CHI Blog

Congenital Hyperinsulinism International information sharing

Browsing Posts published by Matt Schulte

Lori has found an intersting article abstract about newborn molecular genetic testing in Europe.

http://www.endocrine-abstracts.org/ea/0016/ea0016pl5.htm

We’re very pleased to announce that we’ll be attending the Lawson Wilkins Pediatric Endocrine Society / European Society for Pediatric Endocrinology 8th Joint Meeting on Global Care in Pediatric Endocrinology in New York, September 9-12, 2009. The URL for the conference is http://www.lwpes-espe2009.org. We will have a non-profit booth in the vendor area. If you’re going to be at the conference, please stop by and say “Hi!”.

In addition to running a booth for outreach, we will also have a more technical poster presentation, “Global Outcomes for congenital Hyperinsulinism” summarizing some of the HI outcomes our international community has collected from 20 countries. I think we have a really unique breadth of experience that is not found in any one other organization.

And finally, we’re organizing a dinner for some doctors, parents, families, and CHI members! The date is set: Friday, September 11. Come back here for more details on the when and where.

This is an exerpt from a new textbook for diagnostics aimed at pediatricians.  This section is co-written by Dr. Vaneeta Bamba and Dr. Diva D. De León-Crutchlow.

De León-Crutchlow was asked to be on our Scientific Advisory Group.

This is a nice complement to the article by Glaser posted by Andie.

http://www.wrongdiagnosis.com/h/hypoglycemia/book-diseases-20a.htm

Find The 5-Minute Pediatric Consult on Amazon.

Thanks to Lori for this post.

Hello and welcome.  We at Congenital Hyperinsulinism International have decided to start a blog to contribute to our mission of helping children, adults, and families living with congenital hyperinsulinism.

For now, the kind of content we will be talking about include: research articles, new research methods, announcements of CHI activities, and information that will help our community in other ways.

We intend that this is not to be a blog of “opinion.”  We are currently encouraging comments from readers that are objective, on topic and non-personal.  Any comments that we deem to be off topic or of a personal nature will likely be removed from the post.  For example, if you’re mentioning a particular clinical association (e.g., your kid’s name), you’ve crossed the line.  If you feel the overwhelming need to share your personal HI story and ideas, there is a place where that kind of thing is encouraged: the HyperIns Yahoo Group.