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Congenital Hyperinsulinism International information sharing

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On a trip in June to Geneva, Switzerland for his day job, Matt Hopkins (President of CHI) spent a day in Paris, France to visit the HI group at the Necker Children’s Hospital in Paris.  He met with Dr. Jean-Baptiste Arnoux, an HI doctor.  He is part of Pr. De Lonlay’s HI medical group.  Over cups of coffee, they discussed differences in health care systems and the impact on patient and family support needs, how HI cases are diagnosed and managed in France, and various patient, family, and medical community concerns.  Matt delivered some education and awareness pamphlets, all translated into French.  There is some new famiy support group there, which we are following up on to build stronger connections and identify shared goals.


If you’re nearby around May 6 and 7, Matt Hopkins, President of CHI, will be on a business trip for his day job.  He would like to take some extra time off and meet you.  If you’re interested in discussing diagnosis, treatment, support for HI families and children, specific details of how your medical system manages (or not) HI, what facilities you have access to, etc., please let him know ASAP (he’s making travel plans very soon).

He’s particularly interested in discussing regional charity/support organizations.

Contact him at MHopkins@CongenitalHI.org

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