For years congenital hyperinsulinism researchers have been studying the properties of green tea to potentially cure hypoglycemia due to hyperinsulinism/hyperammonemia syndrome. People suffering from this type of hyperinsulinism must load up on carbs before ingesting protein because of increased responsiveness to leucine. Many of these patients also take a medication, diazoxide, to control blood sugar [...]
Browsing Posts in Research
A surgeon in Germany, Dr. Winfried Barthlen, has successfully treated patients with diffuse congenital hyperinsulinism (HI) by removing only 40% of the pancreas rather than 95% or more, which has been the standard for some time. By removing only 40 percent of the pancreas, Dr. Barthlen is hopeful that his patients will not develop diabetes. [...]
Research that could lead to better treatment of a severe form of congenital hyperinsulinism is described in the current ahead of print edition of the online journal, Diabetes. The research is groundbreaking because it involves correcting the cellular defect that is the cause of the disorder. CHI is proud of the fact that two members [...]
This week sugar was in the news again. The price of sugar reached a new high on Thursday due to weather conditions in Australia that could have an effect on the supply of sugar worldwide. More relevant to us, news media sources reported on promising results in research studies on the artificial pancreas. This phase [...]
Dear CHI Friends, I am writing to tell you about an excellent opportunity to spread awareness about HI and to share your opinions about the importance of information sharing for taking care of yourself or a child with HI. The attached electronic survey which is being conducted by NORD, the National Organization of Rare Diseases, [...]
As a bit of a follow up to the last post about genetic screening, I thought this article by Dr. Benjamin Glaser might be a good addition. Here is an exerpt: Mutations in ABCC8, KCNJ11, GLUD1, GCK, and HADHSC are known to be associated with FHI. About 45% of affected individuals have mutations in ABCC8 and about 5% havemutations in the coding region of KCNJ11. [...]
