About
Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulinism.
History
CHI was formed in May, 2005, by a collection of concerned parents, caregivers, and patients. Our current Board of Directors consist primarily of parents of children with congenital hyperinsulinism. Most of us originally met online through a Yahoo! Groups community (the “hyperins” message board), launched in May, 1999.
Our Activities
We exist to support the greater congenital hyperinsulinism community through sponsoring activities (such as conferences), and representing our community’s interests, whether that takes the form of funding medical research, directly supporting a family of child dealing with congenital hyperinsulinism, organizing information on a particular issue of congenital hyperinsulinism, or helping build awareness in less developed countries. Your input is vital! Please let us know what activities you believe we should undertake.
Our Tax-Exempt Status
We are a 501(c)(3) charitable organization. In the United States, contributions to CHI are deductible on your federal income tax (subject to IRS limits). We are not familiar with laws in other countries governing the legality and tax deductibility of their citizens' contributions (yet). Please consult your country's tax code.
Board of Directors
The current Board of Directors is given below indicating the officers as well as any focus area(s). Unless indicated, all directors are parents of children with congenital hyperinsulinism (and one even has it himself). We are in the process of building an e-mail service to facilitate contacting the Board, or any of its members, directly. For now, if you wish to communicate something to the Board, please send e-mail to MHopkins@CongenitalHI.org, which will deliver e-mail to Matt Hopkins.
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