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About
Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulinism.

History
CHI was formed in May, 2005, by a collection of concerned parents, caregivers, and patients. Our current Board of Directors consist primarily of parents of children with congenital hyperinsulinism. Most of us originally met online through a Yahoo! Groups community (the “hyperins” message board), launched in May, 1999.

Our Activities
We exist to support the greater congenital hyperinsulinism community through sponsoring activities (such as conferences), and representing our community’s interests, whether that takes the form of funding medical research, directly supporting a family of child dealing with congenital hyperinsulinism, organizing information on a particular issue of congenital hyperinsulinism, or helping build awareness in less developed countries. Your input is vital! Please let us know what activities you believe we should undertake.

Our Tax-Exempt Status
We are a 501(c)(3) charitable organization. In the United States, contributions to CHI are deductible on your federal income tax (subject to IRS limits). We are not familiar with laws in other countries governing the legality and tax deductibility of their citizens' contributions (yet). Please consult your country's tax code.

Board of Directors
The current Board of Directors is given below indicating the officers as well as any focus area(s). Unless indicated, all directors are parents of children with congenital hyperinsulinism (and one even has it himself). We are in the process of building an e-mail service to facilitate contacting the Board, or any of its members, directly. For now, if you wish to communicate something to the Board, please send e-mail to MHopkins@CongenitalHI.org, which will deliver e-mail to Matt Hopkins.

Name

Position

Additional information

Matthew M. Hopkins
New Mexico
United States

President

Federal and State registrations,
Government agency fundraising,
Website

Julie V. Raskin
New Jersey
United States

Vice-President

Fundraising,
Conference coordinator

Patricia Cymerman
California
United States

Secretary

Government agency fundraising

Jeffrey R. Hart
New Jersey
United States

Treasurer

Financial accounting

Isabel Calderón
Québec
Canada

Director

Contact for Canada,
French and Spanish speaking

Gabrielle Flynn
County Leitrim
Ireland

Director

Contact for Ireland,
Medical methodology

Randy Hart
New Jersey
United States

Director

Conference coordinator

Margaret Maher
New South Wales
Australia

Director

Contact for Australia
Developing organization for Australasian area

Matt Schulte
Kansas
United States

Director

Webmaster
Information Technology