Congenital Hyperinsulinism International

Events

UPCOMING EVENTS

CHI 2017 Family Conference in Galloway NJ2017 Congenital Hyperinsulinism Family Conference

Are you ready? CHOP and CHI are teaming up for the CHI Family Conference 2017. The Conference is open to all HI families, and anyone in the medical field interested in learning more about HI.

Click here for more information and to register online.



PAST EVENTS

CHI event the Sugar Soiree, 2016 edition2016 Sugar Soirée

The 2016 Sugar Soirée, took place on Saturday, November 5th, 2016, at the Renaissance Boston Waterfront Hotel, in Boston, Massachusetts.

Click here for an overview of the event and an extensive slideshow.

Click here to read a press release about N. Scott Adzick receiving the CHI Be My Sugar Award for Surgical Excellence at the third annual Sugar Soirée.


The 2016 Sugar Shindig for CHISugar Shindig, October 8, 2016

Congenital Hyperinsulinism International (CHI) hosted its second annual Sugar Shindig on October 8, 2016 at the Fort Worth Science & History Museum. The Sugar Shindig is a family fun event dedicated to: raising awareness of hyperinsulinism (HI) and diabetes caused by HI; highlighting the work done by Cook Children’s Hyperinsulinism Center and CHI to improve the lives of those living with this rare disease; and raising funds for the ongoing work toward timely recognition of hypoglycemia to reduce brain damage and death. Together with generous supporters, CHI achieves its mission to improve the lives of people living with HI!

Click here to get highlights and to view a slideshow from the day’s events.


Register for the 2016 Paris Family ConferenceCongenital Hyperinsulinism Family Conference, September 8-9, 2016

Congenital Hyperinsulinism International (CHI) with Necker Hospital hosted the Congenital Hyperinsulinism Family Conference in Paris on September 8-9, 2016.

We have posted a video with highlights from the Paris Conference.

We also have an extensive slideshow with an in-depth look at the Conference here.


Million Dollar Bike Ride for Rare Disease ResearchThe Million Dollar Bike Ride

The Million Dollar Bike Ride which took place in Pennsylvania on May 7 was a great success. It was a rainy day, but this did not stop the enthusiasm. The entire team showed up and rode as planned.


CHI and CHOP Family ConferenceCongenital Hyperinsulinism Family Conference, April 15-17, 2016

Congenital Hyperinsulinism International (CHI) and the Children’s Hospital of Philadelphia (CHOP) hosted the Congenital Hyperinsulinism Family Conference in Philadelphia on April 15-17, 2016. Click here to see video presentations from the conference, and visit our Family Conference Presentations page to view PDF versions of these same lectures as well as additional topics not included in the video section.


Congenital Hyperinsulinism International event The Sugar SoireeThe 2015 Sugar Soiree

On November 13, 2015, Congenital Hyperinsulinism International (CHI) held the 2015 Sugar Soiree, an evening dedicated to raising hyperinsulinism awareness and funds for research, education, and support. The event took place at the Carolands Chateau, a stunning mansion designed by renowned French Architect, Ernest Sanson. The grand home has been described as the Downton Abbey of California, and has been the subject of a PBS full length documentary. The philanthropic Johnson family donated the home to be used exclusively for charitable events and CHI is a lucky recipient, having been selected to hold its signature event at the Chateau.

Click here for a slideshow of highlights from the 2015 Sugar Soiree.


5K Run to benefit Congenital Hyperinsulinism

Sharon’s Sugar Shake-Up was a 5K road race set up to honor Aneesh Jai Kaul, who was born on February 16, 2015 and died on March 11, 2015 from lack of oxygen due to Congenital Hyperinsulinism. In order to keep Aneesh’s legacy alive, the proceeds of this race were donated to Congenital Hyperinsulinism International (CHI), the organization dedicated to improving the lives of people born with hyperinsulinism.


The 7th Congenital Hyperinsulinism Family Conference in Barcelona, SpainThe 2015 Congenital Hyperinsulinism Family Conference

On September 29-30, 2015 Congenital Hyperinsulinism International (CHI) and Sant Joan de Déu Children’s Hospital hosted the 2015 Barcelona Congenital Hyperinsulinism Family Conference at the Sant Joan de Déu Children’s Hospital in Barcelona, Spain.

Click here for highlights from this event.



Sugar Shindig event for Congenital HyperinsulinismThe Sugar Shindig

The CHI Sugar Shindig took place on Saturday, February 28th, on Rare Disease Day at the Lone Star Court Hotel in Austin, Texas. The evening highlighted CHI’s rare disease advocacy, research and support at an Austin, Texas venue with a “timeless twist.”

Click here for a slideshow and overview of this event.


CHI Sugar Soiree 2014Sugar Soiree, 2014
On Saturday, November 8, 2014, Congenital Hyperinsulinism International (CHI) hosted a festive evening of fundraising and hyperinsulinism advocacy at the City Winery in New York. The Sugar Soiree is NYC’s sweetest gala – and it included a VIP cocktail hour, delicious dinner and drinks, and a wonderful program including first class musical entertainment, CHI’s new film, and a lifetime achievement award for Dr. Charles Stanley.

Click here for an overview and a slideshow from this event.


Congenital Hyperinsulinism Conference in Dublin, 2014The Second Congenital Hyperinsulinism International Pre-ESPE Family Conference in Dublin, Ireland
Congenital Hyperinsulinism International (CHI) hosted the Second Pre-ESPE CHI Family Conference at the Fitzpatrick Castle Hotel in the south Dublin suburb of Killiney during September 16-17, 2014. World-renowned physicians, researchers, and specialists who treat children with congenital hyperinsulinism, and parent and patient advocacy leaders spoke at the conference. There was ample opportunity for meeting and sharing experiences with other families who have children with congenital hyperinsulinism.

We will have highlights from the Conference posted soon – please check back for our coverage.

6th Family Conference in Galloway NJThe 6th Congenital Hyperinsulinism Family Conference
Congenital Hyperinsulinism International (CHI) and The Children’s Hospital of Philadelphia (CHOP) hosted the Sixth Congenital Hyperinsulinism Family Conference during August 15-17, 2014, at the Stockton Seaview Hotel in Galloway, NJ. World-renowned physicians, researchers, and specialists who treat children with congenital hyperinsulinism, and parent leaders in the fields of education, psychology, research, and advocacy spoke at the conference; you can review their presentations here. There was also ample opportunity for meeting and sharing experiences with other families who have children with congenital hyperinsulinism.

Please click here to see a slideshow from the event.

Charity bike ride for CHIThe Million Dollar Bike Ride for Rare Disease Research
CHI is pumped to announce we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) on May 3, 2014. This event will raise awareness of rare diseases while raising funds for rare disease research.

Please click here or on the image at left for more information.

2014 Rare Disease Day EventA Very Special Cocktail Party
The Very Special Cocktail Party for Congenital Hyperinsulinism International took place on Friday, February 28th. It took place at the Van Vleck House in Montclair, New Jersey. 120 people attended from Texas, Georgia, New York, Pennsylvania, Massachusetts and New Jersey. Guest speakers included Mireille and Brian Ptak, HI parents; Doctors DeLeon, Stanley, and Thornton; Nurse Practitioner, Enyo Dzata, and CHI Intern Rianna Sommers presenting a video from an international group of HI families. At the event some HI families and individuals met for the first time, creating new bonds while old friends got to catch up, and the CHI community was strengthened by the support of all those who attended. We learned about new research and initiatives, the work being done to increase early diagnosis, and challenges and triumphs of HI families. The event was also a very successful fundraiser to support CHI. The event was made possible by our sponsors, XOMA, BioMarin, Sean and Sue Cullinan, and Amy Graydon and Dan Kaplan, and everyone who donated to the event. Please click here to see a slideshow from the event.

Location for the 5th CHI Family Conference5th Congenital Hyperinsulinism International Family Conference
The 5th Congenital Hyperinsulinism International (CHI) Family Conference took place near Milan from September 17th – 18th, 2013. The event was held in conjunction with the 9th Joint Meeting of Paediatric Endocrinology. The events took place on September 17 – 18 at the NH Milano 2 Hotel (seen at left) just outside of Milan in the suburb of Segrate.

We were joined by members of the CHI Scientific Advisory Group (SAG) and other prominent pediatric endricrinologists and specialists. Click here to view their presentations that were made during the conference.

Click here for more information and to see a slideshow from the event.

2013 CHI Endocrine Society Meeting2013 CHI Endocrine Society Meeting
On June 15th and 16th, 2013, CHI held the Congenital Hyperinsulinism International Endocrine Society Meetings. At the meeting, leading world specialists in the field presented on some of their latest research findings and updated participants on their hyperinsulinism centers. There were also presentations on HI at school, parenting the HI child, and a special report on HI care in Latin America. HI patients, parents and caregivers all had an opportunity to pose questions to leading experts in the field of HI and to have an important exchange of ideas between physicians, nurses, members of the biotech industry, and HI family members.


CHI hosted this event at the Van Vleck House in Montclair2013 Rare Disease Day Event
On Thursday, February 28, 2013, we gathered on Rare Disease Day for a cocktail party in support of Congenital Hyperinsulinism International (CHI). The gathering took place at the Van Vleck House in Montclair, NJ, and included hors d’oeuvres and wines from Culinariane and Amanti Vino. Click here to view a slideshow with highlights from the event.


Cook Children's Hospital in Fort Worth, Texas2012 Endocrine Society Congenital Hyperinsulinism Dinner Meeting
Congenital Hyperinsulinism International and The Hyperinsulinism Center of Cook Children’s Hospital of Fort Worth, Texas hosted an evening dedicated to families affected by congenital hyperinsulinism. The Congenital Hyperinsulinism Endocrine Society Dinner Meeting took place on June 23, 2012 at the Table 7 Bistro at 720 Fannin Street in Houston, Texas.

The families who attended had the chance to meet and discuss issues of concern with leading pediatric endocrinologists, HI researchers, and other HI experts. There was also an opportunity to speak informally with other HI family members. Additionally, researchers and physicians shared information about their projects, research and practice.


2012 CHI Family Conference2012 Family Conference
Congenital Hyperinsulinism International (CHI), in conjunction with the Children’s Hospital of Philadelphia (CHOP), hosted the fourth Congenital Hyperinsulinism Family Conference on March 17 – 18, 2012. Conference attendees learned about recent advances in the diagnosis and treatment of congenital hyperinsulinism (HI) from experts in the field representing the leading international HI centers. In addition to the learning opportunities, there was ample time for networking with other HI families.

Click on the image at left to view the PDF brochure from this event.

Click here for an overview of presentations made at this conference.


event-spacer2010 Family Conference
The third CHI Family Conference was held June 18 & 19, 2010 in San Diego, CA This conference is intended for individuals with Congenital Hyperinsulinism (HI) as well as family members and caregivers of those with HI. Speakers and participants joined us from around the globe.


Childrens Hospital of Philadelphia2006 Family Conference
The second Congenital Hyperinsulinism Family Conference sponsored by Congenital Hyperinsulinism International (CHI) and the Children’s Hospital of Philadelphia Congenital Hyperinsulinism (CHOP) Center was held on June 17 and 18, 2006. The conference was held at the City Line Holiday Inn in Philadelphia, PA.

At this conference leading specialists discussed treatment options, management techniques, genetic advances and potential future strategies. There were also sessions on parenting children with HI, HI in the school setting, and nutrition and feeding. Additionally, there were sessions for children and teenagers with HI and their siblings.

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