Links

Hospitals with congenital hyperinsulinism centers are listed below.
* Denotes a CHI Center of Excellence

hospital that treats congenital hyperinsulinism

Charitie Hospital, Berlin, Germany *
https://www.charite.de/

Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania, USA *
https://www.chop.edu/centers-programs/congenital-hyperinsulinism-center

Hyperinsulinism Center

Cook Children’s Hospital, Fort Worth, Texas, USA *
https://cookchildrens.org/endocrinology/specialty-programs/pages/hyperinsulinism-center.aspx

center for treating hyperinsulinism

Great Ormond Street, London, England *
https://www.gosh.nhs.uk/medical-information/clinical-specialties/endocrinology-information-parents-and-visitors/conditions-we-treat/congenital-hyperinsulinism-chi

facility for treatment of congenital hyperinsulinism

Hadassah Hospital, Jerusalem, Israel
http://www.hadassah-med.com/children-site/departments-and-units/pediatric-endocrinology-clinic.aspx

hyperinsulinism specialist

Mater Children’s Hospital, South Brisbane, Australia
https://www.qldpaedendocrinology.com.au/dr-andrew-cotterill.html

Necker Enfants Malades

Necker Hospital, Paris, France
http://hopital-necker.aphp.fr/

congenital hyperinsulinism service

NORCHI, Northern Congenital Hyperinsulinism Service, Manchester, England *
https://www.norchi.nhs.uk/

treatment for congenital hyperinsulinism

Sick Kids, Toronto, Canada
http://www.sickkids.ca/Endocrinology/What-we-do/index.html

UCSF

UCSF Benioff Children’s Hospital, San Francisco, CA
https://pedsurg.ucsf.edu/

Info on the Endocrinology Clinic here:
https://www.ucsfbenioffchildrens.org/clinics/endocrinology_clinic/

center for congenital hyperinsulinism

University Clinic, Magdeburg, Germany *
http://www.medizin.uni-greifswald.de/ki_chir/index.php?L=1&id=565

Genetic Testing

University of Exeter Medical School, Exeter, UK
https://hyperinsulinismgenes.org

Athena Diagnostics
https://www.athenadiagnostics.com/view-full-catalog/c/congenital-hyperinsulinism-evaluation

The University of Chicago
https://dnatesting.uchicago.edu/tests/congenital-hyperinsulinism-panel-0

Rare disease and congenital hyperinsulinism patient groups, organizations, websites, and social media discussion groups

CHI Facebook Page
https://www.facebook.com/pages/Congenital-Hyperinsulinism-International/138424716215911

CHI Facebook Parents’ Forum
https://www.facebook.com/groups/136931403062072/

Asociación de Afectados por Hiperinsulinismo Congénito (AFHICO – Spain) on Facebook
https://www.facebook.com/hiperinsulinismo/

Association des Hyperinsulinismes – France
http://www.hyperinsulinisme.com/
Facebook page: https://www.facebook.com/Association-des-Hyperinsulinismes-163807533646422/

Azucar Para la Vida – Colombia
https://azucarparalavida.org/
Facebook page: https://www.facebook.com/azucarparalavida/

The Children’s Hyperinsulinism Charity of the UK
https://www.hyperinsulinism.co.uk/
Facebook page: https://www.facebook.com/hyperinsulinismuk/
Facebook Group: https://www.facebook.com/groups/CHCharityUK/

Canadian Organization for Rare Disorders – CORD
http://www.raredisorders.ca/

Global Genes – USA
https://globalgenes.org/

Hiperinsulinismo Congénito – HICA – Argentina
http://www.hicongenito.com.ar/
Facebook Page: https://www.facebook.com/hicongenito/

Ketotic Hypoglycemia International
A global patient organization run by, and for families
https://ketotichypoglycemia.org/

Kongenitaler Hyperinsulinismus e.V. – Germany
http://www.hyperinsulinismus.de/
Facebook Page: https://www.facebook.com/Hyperinsulinismus/

National Organization for Rare Disorders NORD – USA
https://rarediseases.org/

Rare Diseases Europe – EURORDIS
https://www.eurordis.org/

Regroupement québécois des maladies orphelines, RQMO
https://rqmo.org/

Vivere con CHI, Italy
https://www.iperinsulinismo.org/
Facebook Page: https://www.facebook.com/vivereconchi