The Penn Medicine Orphan Disease Center (ODC) will host the 6th Annual Million Dollar Bike Ride on Saturday June 8, 2019 to raise money for rare disease research. Our Raring to Go for CHI Team is gearing up to raise funds for hyperinsulinism research once again and we need you!
How you can get involved:
- Bike for the cause – Ride with us on Saturday June 8 in Philadelphia as a part of Our Raring to Go for CHI cycling team. Learn more and register here: www.milliondollarbikeride.org/2019-cyclist-registration/
- Create your own fundraising page – Tell your story; why it is important to you to support hyperinsulinism research. Click the orange Start Fundraising button and get started here: www.justgiving.com/campaign/raringtogoforCHI2019
- Donate to Raring to Go for CHI Team – All donations are important and greatly appreciated to supporting research for better treatments and improving the lives of people with HI all over the world. You can donate here: www.justgiving.com/campaign/raringtogoforCHI2019
We hope you can join us in raising research funds for new treatments for congenital hyperinsulinism (HI). Your fundraising dollars will be used for an innovative, pre-clinical or clinical study designed to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism.
The first $30,000 we raise is matched by the University of Pennsylvania, our partner in funding research. Thanks to all of you, CHI has raised over $381,000 for congenital hyperinsulinism research.
Our participation in the Million Dollar Bike Ride in years past has resulted in 5 research projects:
- 2018 Grant Recipient: Dr. Amanda Ackermann of the Children’s Hospital of Philadelphia for Vitamin E supplementation in hyperinsulinism/hyperammonemia syndrome – read about the 2018 Research Topic here.
- 2017 Grant Recipient: Dr. Diva De León-Crutchlow of the Children’s Hospital of Philadelphia and the University of Pennsylvania for a pilot study of the bihormonal bionic pancreas for the treatment of diabetes post-pancreatectomy in children with congenital hyperinsulinism – read about the 2017 Research Topic here.
- 2016 Grant Recipient: Dr. Changhong Li of Children’s Hospital of Philadelphia for drug development for a treatment for glutamate dehydrogenase hyperinsulinism – read about the 2016 Research Topic here.
- 2015 Grant Recipient: Mark Dunne, BSc, PhD, of the University of Manchester, for research towards precision medicine in treatment of congenital hyperinsulinism in infancy – read about the 2015 Research Topic here.
- 2014 Grant Recipient: Dr. Diva De León-Crutchlow for a pilot study of the efficacy and safety of sirolimus in the treatment of congenital hyperinsulinism – read about the 2014 Research Topic here.
All money must be raised by June 15, 2019. Get going today! Any questions or need any assistance with your fundraising? Email Jennifer Schmitt at jschmitt@congenitalhi.org.
Let’s keep it up for a brighter future!
