Congenital Hyperinsulinism International

Be My Sugar, Congenital Hyperinsulinism International

Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulism.

What We Do:

  • Advocate on behalf of children and adults with congenital hyperinsulinism.
  • Create and provide educational resources about congenital hyperinsulinism to patients, families, medical professionals, school personnel, and any other interested parties.
  • Support research and development of medical knowledge and medical devices to better understand and treat congenital hyperinsulinism.
  • Support children, adults, and their families living with congenital hyperinsulinism.
  • Increase awareness of congenital hyperinsulinism, especially among medical personnel, in order to improve timely diagnosis.

View the Be My Sugar Gallery to learn about hyperinsulinism and the children and families who live with it.

View our Sugar Baby Gallery

Click the image above to view our Be My Sugar campaign leading up to the 2016 Rare Disease Day!


Watch our video to learn about hyperinsulinism and the children and families who live with it. The video emphasizes the importance of early diagnosis, research, and support for hyperinsulinism families.


Study opportunity:

XOMA (US) LLC is conducting an Observational Study of Congenital Hyperinsulinism and they will provide a Dexcom G4 Platinum Continuous Glucose Monitoring System (CGMS) to study participants which participants may keep at the end of the study.

If you would like more information, or are interested to get started on the survey portion of the study, please get more details and a link to the study on our Observational Study page.

XOMA



Stories from people who have congenital hyperinsulinism

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