Congenital Hyperinsulinism International

Be My Sugar, Congenital Hyperinsulinism International

Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulism.

What We Do:

  • Advocate on behalf of children and adults with congenital hyperinsulinism.
  • Create and provide educational resources about congenital hyperinsulinism to patients, families, medical professionals, school personnel, and any other interested parties.
  • Support research and development of medical knowledge and medical devices to better understand and treat congenital hyperinsulinism.
  • Support children, adults, and their families living with congenital hyperinsulinism.
  • Increase awareness of congenital hyperinsulinism, especially among medical personnel, in order to improve timely diagnosis.

Job listing at CHIJob listing: HI Global Registry (HIGR) Manager

Congenital Hyperinsulinism International (CHI) is hiring a part-time (20-hours per week) Manager for the HI Global Registry. This is a great opportunity for an individual interested in managing an exciting new project to join the CHI team. Click here to read more about this position and how to apply.

View the Be My Sugar Gallery to learn about hyperinsulinism and the children and families who live with it.

View our Sugar Baby Gallery

Click the image above to view our Be My Sugar campaign leading up to the 2016 Rare Disease Day!

Watch our video to learn about hyperinsulinism and the children and families who live with it. The video emphasizes the importance of early diagnosis, research, and support for hyperinsulinism families.


Register for the 2016 Paris Family ConferenceCongenital Hyperinsulinism Family Conference, September 8-9, 2016

Congenital Hyperinsulinism International (CHI)  y el Hospital Necker organizarán la Conferencia Familiar del Hiperinsulinismo Congénito de París, los días 8-9 de septiembre de 2016. Para obtener más información y registrarse en español, haga clic aquí

Click here or on the image at left for more information and to register.

Pour plus d’informations et vous inscrire en français, cliquez ici

The 2016 Sugar Shindig for CHISugar Shindig, October 8, 2016

Congenital Hyperinsulinism International (CHI) will be hosting its second annual Sugar Shindig on October 8, 2016 at the Fort Worth Science & History Museum. The Sugar Shindig is a family fun event dedicated to: raising awareness of hyperinsulinism (HI) and diabetes caused by HI; highlighting the work done by Cook Children’s Hyperinsulinism Center and CHI to improve the lives of those living with this rare disease; and raising funds for the ongoing work toward timely recognition of hypoglycemia to reduce brain damage and death. Together with generous supporters, CHI achieves its mission to improve the lives of people living with HI! Click here or on the image to get more information and to buy tickets online.

CHI event the Sugar Soiree, 2016 edition2016 Sugar Soirée

Save the Date: Saturday, November 5, 2016

The 2016 Sugar Soirée, taking place at the Renaissance Boston Waterfront Hotel, in Boston, Massachusetts.

Click here for more information and to buy tickets online.

Stories from people who have congenital hyperinsulinism



Browse our recent Twitter and Facebook feeds below. At right, you can click to follow us on Instagram:

Follow Congenital HI on Instagram

Follow Congenital HI on Twitter

Follow Congenital HI on Facebook