Congenital Hyperinsulinism International

Be My Sugar, Congenital Hyperinsulinism International

Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulism.

What We Do:

  • Advocate on behalf of children and adults with congenital hyperinsulinism.
  • Create and provide educational resources about congenital hyperinsulinism to patients, families, medical professionals, school personnel, and any other interested parties.
  • Support research and development of medical knowledge and medical devices to better understand and treat congenital hyperinsulinism.
  • Support children, adults, and their families living with congenital hyperinsulinism.
  • Increase awareness of congenital hyperinsulinism, especially among medical personnel, in order to improve timely diagnosis.

View the Be My Sugar Gallery to learn about hyperinsulinism and the children and families who live with it.

View our Sugar Baby Gallery

Click the image above to view our Be My Sugar campaign leading up to the 2016 Rare Disease Day!

Watch our video to learn about hyperinsulinism and the children and families who live with it. The video emphasizes the importance of early diagnosis, research, and support for hyperinsulinism families.


Register for the 2016 Paris Family ConferenceCongenital Hyperinsulinism Family Conference, September 8-9, 2016

Congenital Hyperinsulinism International (CHI) with Necker Hospital will host the Congenital Hyperinsulinism Family Conference in Paris on September 8-9, 2016. Click here or on the image at left for more information and to register.

Pour plus d’informations et vous inscrire en français, cliquez ici

Para obtener más información y registrarse en español, haga clic aquí

CHI event the Sugar Soiree, 2016 edition2016 Sugar Soirée

Save the Date: Saturday, November 5, 2016

The 2016 Sugar Soirée, taking place at the Renaissance Boston Waterfront Hotel, in Boston, Massachusetts.

More information coming soon …!

Stories from people who have congenital hyperinsulinism


Browse our recent Twitter and Facebook feeds below. At right, you can click to follow us on Instagram:

Follow Congenital HI on Instagram

Follow Congenital HI on Twitter

Follow Congenital HI on Facebook