Congenital Hyperinsulinism International

Be My Sugar, Congenital Hyperinsulinism International

Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulism.

What We Do:

  • Advocate on behalf of children and adults with congenital hyperinsulinism.
  • Create and provide educational resources about congenital hyperinsulinism to patients, families, medical professionals, school personnel, and any other interested parties.
  • Support research and development of medical knowledge and medical devices to better understand and treat congenital hyperinsulinism.
  • Support children, adults, and their families living with congenital hyperinsulinism.
  • Increase awareness of congenital hyperinsulinism, especially among medical personnel, in order to improve timely diagnosis.

Notice of Clinical Studies

Learn more about a congenital hyperinsulinism clinical research study for infants with HI less than 1 year of age at http://studies.clin-edge.com/hyperinsulinism/ and https://clinicaltrials.gov/ct2/show/NCT02937558?recrs=a&cond=congenital+hyperinsulinism&rank=2.

Questions? Call (844) 311-3330 to speak to a study representative.


View the Be My Sugar Gallery to learn about hyperinsulinism and the children and families who live with it.

View our Sugar Baby Gallery

Click the image above to view our Be My Sugar campaign leading up to the 2016 Rare Disease Day!


Watch our video to learn about hyperinsulinism and the children and families who live with it. The video emphasizes the importance of early diagnosis, research, and support for hyperinsulinism families.


New! CHI “What is Congenital Hyperinsulinism” Posters

Available for download and printing on our new CHI Posters page; available in English, Spanish, French, German, Italian, Portuguese, and Catalan.

What is HI posters



Upcoming Events:

2017 Sugar Soiree2017 Sugar Soiree

Congenital Hyperinsulinism International (CHI) will be holding its annual Sugar Soiree, hosted by Conan O’Brien, on November 19, 2017 at the Pool and the Grill Restaurants in the Seagram Building, in New York City. Funds raised at the Sugar Soiree will support the work of CHI to raise awareness of hyperinsulinism to prevent brain damage and death, advance new research leading to better treatments and cures, and provide families with support and access to lifesaving medication and treatment.

To learn more, or to purchase a table, tickets, or to sponsor the evening, please click here.



Stories from people who have congenital hyperinsulinism

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