Hospitals with congenital hyperinsulinism centers are listed below.
* Denotes a CHI Center of Excellence

hospital that treats congenital hyperinsulinism
Charitie Hospital, Berlin, Germany *

Childrens Hospital of Philadelphia
Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania, USA *
Hyperinsulinism Center
center for treating hyperinsulinism
facility for treatment of congenital hyperinsulinism
hyperinsulinism specialist
Mater Children’s Hospital, South Brisbane, Australia
Necker Enfants Malades
Necker Hospital, Paris, France
congenital hyperinsulinism service
NORCHI, Northern Congenital Hyperinsulinism Service, Manchester, England *
treatment for congenital hyperinsulinism
UCSF Benioff Children’s Hospital, San Francisco, CA

Info on the Endocrinology Clinic here:

center for congenital hyperinsulinism

Genetic Testing

Rare disease and congenital hyperinsulinism patient groups, organizations, websites, and social media discussion groups

CHI Facebook Page

CHI Facebook Parents’ Forum

Asociación de Afectados por Hiperinsulinismo Congénito (AFHICO – Spain) on Facebook

Association des Hyperinsulinismes – France
Facebook page:

Azucar Para la Vida – Colombia
Facebook page:

The Children’s Hyperinsulinism Charity of the UK
Facebook page:
Facebook Group:

Canadian Organization for Rare Disorders – CORD

Global Genes – USA

Hiperinsulinismo Congénito – HICA – Argentina
Facebook Page:

Ketotic Hypoglycemia International
A global patient organization run by, and for families

Kongenitaler Hyperinsulinismus e.V. – Germany
Facebook Page:

National Organization for Rare Disorders NORD – USA

Rare Diseases Europe – EURORDIS

Regroupement québécois des maladies orphelines, RQMO

Vivere con CHI, Italy
Facebook Page: