The following is shared by HI mother Maureen: Mother’s Day comes around quietly each year, in a beautiful time of the year, spring. If all is well, it does not ask too much from us as mothers, but it always invites me into a moment of reflection. Caring for a child with HI is not … Read more
Ever since I was a little kid, I’ve been fascinated by genetics. The idea that tiny pieces of information inside our cells help not only shape who we are but can also cause chaos with even one small change has always been incredible to me. This awe and appreciation led me to a Genetics PhD … Read more
The following is shared by Anna Nicolaou: For individuals living with hyperinsulinism (HI), nutrition is not optional, but a medical necessity; a lifeline and access to proper nutritional guidance can mean the difference between stability and crisis. The right foods, the right timing, and the right support can prevent dangerous hypoglycaemic episodes and protect long-term … Read more
The following post is by Kimberley Pfaff: In most cases, a sibling bond is created right as the youngest is born. They can quickly become best friends, and in the end will share more support with one another than with their own parents. For Ricky, my son born with HI, his brother Mickey wasn’t only … Read more
There is a remarkable amount of activity right now focused on understanding what it’s really like to live with congenital hyperinsulinism (HI). Through the HI Global Registry (HIGR) — the patient-powered research project CHI launched in 2018 — we’ve been able to capture the lived experience of HI in a detailed, scientific, and meaningful way. … Read more