Introduction to our new Research Manager, Kristen Rohli, PhD

Kristen Rohli PhD

We are thrilled to welcome Kristen Rohli, PhD as our new Research Manager! Kristen’s impressive educational experience working in biochemistry, psychology, and genetics makes her an excellent addition to our research team. Continue reading to learn more about Kristen! I grew up in Baton Rouge and chose to go to Louisiana State University (LSU) for … Read more

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Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials

Clinical trials Roundtable

On Tuesday, Tai Pasquini, CHI’s Chief Research Officer attended the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials in Washington, DC. The event was hosted by FARA, a rare disease patient organization, and Leavitt Partners, a law firm, along with stakeholders across the rare disease community. Prominent leaders from the FDA, NIH, … Read more

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A Passion for Fighting Food Insecurity Grows from Experience with Hyperinsulinism

looking for solution for food insecurity

In our area of northern New Jersey, the Fourth of July parade is a lively, annual festival showcasing the work of various organizations; pre-schools and daycares, musical ensembles, sports teams, religious organizations, and volunteer groups will proudly march with their banners in-hand to share their passion with the community. It is a great small city … Read more

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My First Family Conference: Breakdancing and Murphy’s Law

CHI group at 2024 Family Conference in Fort Worth

As CHI’s Communications Associate, one of my primary roles is to elevate the patient voice in our hyperinsulinism advocacy work. Working digitally, though, can take me out of the real-life challenges that come along with HI management – I don’t see first-hand the daily inconveniences and anxieties around food, development, and mobility. At our most … Read more

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2024 Million Dollar Bike Ride Blog

2024 MDBR riders before the ride

I’m so glad we are going to Philadelphia and it isn’t for a doctor’s appointment, Ben said, as we were driving to that city for the Million Dollar Bike Ride. Driving South from New Jersey, there wasn’t much traffic and the weather was perfect. When we arrived in Philadelphia, we checked into our hotel, which … Read more

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