NORD Breakthrough Summit 2024

Julie Raskin from CHI attending the NORD Summit

I attended the National Organization for Rare Disorders Breakthrough Summit in Washington DC last week. The focus of this year’s Summit was “Equitable Access to Innovation.” It was fantastic to spend time learning from and connecting with people linked by a shared passion to make the world better for the millions of people living with … Read more

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Introduction to our new Research Manager, Kristen Rohli, PhD

Kristen Rohli PhD

We are thrilled to welcome Kristen Rohli, PhD as our new Research Manager! Kristen’s impressive educational experience working in biochemistry, psychology, and genetics makes her an excellent addition to our research team. Continue reading to learn more about Kristen! I grew up in Baton Rouge and chose to go to Louisiana State University (LSU) for … Read more

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Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials

Clinical trials Roundtable

On Tuesday, Tai Pasquini, CHI’s Chief Research Officer attended the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials in Washington, DC. The event was hosted by FARA, a rare disease patient organization, and Leavitt Partners, a law firm, along with stakeholders across the rare disease community. Prominent leaders from the FDA, NIH, … Read more

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