On Tuesday, Tai Pasquini, CHI’s Chief Research Officer attended the Pediatric Inclusion Roundtable: Effective Inclusion of Children Early in Clinical Trials in Washington, DC. The event was hosted by FARA, a rare disease patient organization, and Leavitt Partners, a law firm, along with stakeholders across the rare disease community. Prominent leaders from the FDA, NIH, … Read more
In our area of northern New Jersey, the Fourth of July parade is a lively, annual festival showcasing the work of various organizations; pre-schools and daycares, musical ensembles, sports teams, religious organizations, and volunteer groups will proudly march with their banners in-hand to share their passion with the community. It is a great small city … Read more
As CHI’s Communications Associate, one of my primary roles is to elevate the patient voice in our hyperinsulinism advocacy work. Working digitally, though, can take me out of the real-life challenges that come along with HI management – I don’t see first-hand the daily inconveniences and anxieties around food, development, and mobility. At our most … Read more
I’m so glad we are going to Philadelphia and it isn’t for a doctor’s appointment, Ben said, as we were driving to that city for the Million Dollar Bike Ride. Driving South from New Jersey, there wasn’t much traffic and the weather was perfect. When we arrived in Philadelphia, we checked into our hotel, which … Read more
Congenital Hyperinsulinism International is excited to announce our newest member of our Board of Trustees, Justyna Montemurro BSN, RN! Justyna joins the board from New Jersey as a wife to Jeff Montemurro and mother to three children with the ABCC8 gene: Myla (10), Lucas (7), and Remy (3). Justyna has 10 years of experience as … Read more