2017 Sugar Soiree

Information on Sponsorships

Research Breakthrough Sponsor: $250,000
Research Leadership Sponsor: $100,000
Presenting Sponsor: $50,000
Diamond Sponsor: $25,000
Platinum Sponsor: $10,000
Gold Sponsor: $5,000
Silver Sponsor: $2,500

*Platinum, Gold and Silver Sponsorships can be purchased online; Research Leadership, Presenting, and Diamond Sponsorships can be coordinated with CHI’s Executive Director Julie Raskin by email at jraskin@congenitalhi.org or by phone at 973-544-8372.

Congenital Hyperinsulinism International (CHI) will be holding its annual Sugar Soiree, on November 19, 2017 at the Pool and the Grill Restaurants in the Seagram Building, in New York City.

The restaurants bring together the best in New York dining, interior design, and architecture, with American chefs Mario Carbone and Rich Torrissi in charge in this elegant and storied setting. The restaurants hold national landmark status in the space originally designed by Phillip Johnson and Mies van der Rohe. With both restaurants opening just this year, attending the Soiree is a wonderful opportunity to support a great cause while enjoying a unique and sought after dining experience.

CHI has reserved a block of rooms at the Eventi Hotel in New York City for those who will be in New York for the weekend of the Sugar Soiree. We have special rates for the nights of November 17, 18, 19, and 20. You can make your reservations at this link: 2017 Sugar Soiree Room Block. Reservations must be made by October 18.

CHI, a 501(c)3, is a lifeline to those born with congenital hyperinsulinism (HI) and their families. CHI is the global organization dedicated to supporting children and adults born with HI. CHI also supports research leading to better treatments and a cure and works to raise awareness of the condition to reduce brain damage and death from prolonged hypoglycemia.

One of the most revered American television hosts and comedians of all time, Conan O’Brien, will be the host of the Sugar Soiree.

Dr. Diva De León, Director of the Congenital Hyperinsulinism Center at the Children’s Hospital of Philadelphia, will receive the CHI Be My Sugar Award for Medical Excellence at the Soiree. Dr. De León is at the forefront of HI clinical care and research. She has treated hundreds of children with the rare condition and is a physician-scientist directing an NIH-funded translational research program with the goal of identifying new treatments and cures. She is an ardent supporter of all born with HI, as well as their families, and is known all over the world for her compassion, groundbreaking research projects, and cutting-edge care.

At the Soiree, Alex Fallon will receive the CHI Be My Sugar Extraordinary Volunteer Award. Ms. Fallon has shared her graphic design talent with CHI and has spent countless hours volunteering her time. Ms. Fallon is an award-winning advertising art director and graphic designer. She has worked at many top agencies including Young & Rubicam, Mezzina/Brown, McCann Amster Yard, and Ogilvy & Mather. She has directed work on global campaigns for consumer products such as American Express, Hershey Foods, Kimberly-Clark, Miller Lite, and Jolly Rancher, which won two ADDY awards.

The 2016 Recipient of the CHI Be My Sugar Award for Medical Excellence, Dr. Paul Thornton, Medical Director and Endowed Chair of the Cook Children’s Hyperinsulinism Center in Fort Worth, TX will also be recognized by Conan O’Brien. Dr. Thornton is the lead author of the notable Hypoglycemia Guidelines for Infants and Children, published in the Journal of Pediatrics. These guidelines set a new and important standard for recognizing hypoglycemia before adverse consequences occur. Dr. Thornton is well known globally for his outstanding research and dedication to improving the care of children born with HI.

Funds raised at the Sugar Soiree will support the work of CHI to:

• Raise vital awareness of the condition to prevent prolonged hypoglycemia that can lead to brain damage and death.
• Advance new research with the development of the HI Global Registry and funding for research.
• Help patients gain access to specialized treatment, medications, and supplies and excellent care.
• Provide families and patients a safe forum for sharing and up-to-date online resources and support funds to help patient families in need travel to and stay in out-of-town hospital locations while children are receiving specialized care.

CHI is a 501(c)(3) organization in the United States. U.S. Contributions and Auction Donations are tax-deductible. CHI’s Tax ID number is 20-3068945.

For more information or questions please contact CHI’s Executive Director Julie Raskin by email at jraskin@congenitalhi.org or by phone at 973-544-8372.

Thank you so much for your support.

Our Mission

CHI is the leading organization dedicated to improving the lives of people living with hyperinsulinism (HI). HI is a life-threatening disorder that causes dangerously low blood sugar levels due to the over-production of insulin. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death.

CHI supports research toward better treatments and a cure, tirelessly advocates for timely diagnosis and improved standards of care, and supports people living with HI every step of the way.

We thank you for partnering with us to prevent unnecessary brain damage and death, search for better treatments, and improve the quality of life for all HI patients.