Please join us!
Congenital Hyperinsulinism International (CHI) and Cook Children’s invite you to the 2018 Congenital Hyperinsulinism Family Conference, July 27-29, 2018 in Fort Worth, Texas.
This is your opportunity to hear from world-renowned physicians and researchers who treat children with congenital hyperinsulinism, and to meet and share experiences with other families that have children with HI.
The conference will include:
- A Meet and Greet Friday Evening
- A Review of Current Treatment Options
- Speed Dating with the Specialists
- A Presentation on Understanding your Genetic Report
- A Session on Coping with the Stress of Parenting a Child with Chronic Health Issues
- Update on Investigational Medications and Congenital Hyperinsulinism Research
- HI-Stories: Families Share their Experiences of living with HI
- Learning about Managing HI at School
- Family Dinner on Saturday Night
- Sunday Breakfast Session
- Sessions on many more topics
Conference Faculty
The Conference Faculty will be made up of members of the renowned Cook Children’s Congenital Hyperinsulinism Center, CHI Patient Advocates, and other world leaders in the field of congenital hyperinsulinism.
The Cook Children’s Center Faculty will include:
Medical Director, Endocrine and Diabetes, and Hyperinsulinism Center
Jonathan Nedrelow, MD
Associate Medical Director, Neonatology
John Uffman, MD
Pediatric Surgeon
Lisa Truong, CPNP
Endocrine and Diabetes, and Hyperinsulinism Center
Dana Shafir, PhD
Clinical Therapist
Social Worker
Katie Kennedy MS, RD, LD, CDE
Dietician
Kathy O’Bryan MS, RD, LD
Dietician
Courtney Reynolds, MPH CPH
Research Coordinator
Guest Faculty will include:
Medical Director, Hyperinsulinism Center
CHOP
Philadelphia, PA
Charles Stanley, MD
Founder, Hyperinsulinism Center, CHOP
Philadelphia, PA
Pratik Shah, MD, PhD
Consultant
Hyperinsulinism Centre, GOSH
London, England
Klaus Mohnike, MD
Pediatric Endocrinologist
Otto-von-Guericke-University Magdeburg
Magdeburg, Germany
Director of Elementary Education & Student Support Services
Imlay City Schools, Detroit Area, Michigan
Davelyn Hood, MD, MBA
President, Board of Directors
Congenital Hyperinsulinism International
Julie Raskin, MA
Executive Director
Congenital Hyperinsulinism International
For the Kids
There will be volunteer babysitters at the conference for children with HI and their siblings. The babysitting will be in adjoining rooms. Children will join their parents for snacks and meals, and parents will be responsible for all medical care.
Teens and young adults are welcome at the conference.
Where
The conference will be held at Hilton Garden Inn Fort Worth Medical Center hotel, conveniently located on I-30, minutes from Texas Christian University, and near the Fort Worth Stockyards and Fort Worth Zoo in downtown Fort Worth. This south Fort Worth hotel is only 30 minutes from the Dallas/Fort Worth International Airport (DFW) and Dallas Love Field Airport (DAL), situated in the Medical Center campus.
When
Join us beginning in the evening of Friday, July 27 for the Meet and Greet from 7-9 pm. The conference will end at noon on Sunday July 29.
Cost
The registration for the conference is $50 per adult and teenager, which includes program registration, Meet and Greet Friday event, Continental breakfast, lunch, and dinner on Saturday, and a working breakfast on Sunday. The registration for children 3-12 is $25 and includes the conference meals. Children under 3 are free. There is also a family rate of $150 for Families of 4 or more.
Attendance is limited to the first 150 people, so don’t delay in sending in your completed registration form.
About Cook Children’s
Cook Children’s Hyperinsulinism Center is led by Medical Director Paul Thornton, M.D., one of the nation’s few physicians with extensive clinical and research experience in CHI. In the past, saying the word “cure” in relation to congenital hyperinsulinism (CHI) was only a dream. Now, as one of the premier programs in the country, Cook Children’s Hyperinsulinism Center has cured more than 90 percent of our focal CHI patients.
As one of the premier programs in the country, Cook Children’s Hyperinsulinism Center has a world renowned team that’s devoted to providing quality, family-centered care to the children we serve. Our highly skilled, multidisciplinary team includes physicians specializing in endocrinology, pediatric surgery, neonatology, neurology, gastroenterology, pathology and radiology. Our team is supported by a dedicated CHI nurse practitioner, social worker, clinical therapist, Child Life specialist, nutritionists and feeding and speech therapists. Together, this team works closely with patients and families to provide the most effective treatment plan possible.
