Our final Congenital Hyperinsulinism Family Conference of 2024 was held at the Hilton Liverpool City Center in Liverpool, UK. The conference was organized by Congenital Hyperinsulinism International (CHI) with the Children’s Hyperinsulinism Charity UK (CHC).
For the first time, a small part of the conference was available to watch via live stream, connecting us to viewers in Bosnia and Herzegovina, Portugal, Pakistan, Jamaica, The Netherlands, and more!
Skip ahead to view our slideshow of the event!
Visit our Liverpool blog post to read more about the conference.
CHI and CHC were joined in Liverpool by world-renowned physicians, researchers, congenital hyperinsulinism (HI) specialists, HI family members, and HI advocacy leaders.
Many of these experts presented at the conference, providing invaluable insights into the condition – you can view their presentations here. In addition to the informative presentations, we also had interactive sessions where individuals and families affected by HI came together to share their stories and experiences. This was a wonderful opportunity for everyone to learn from one another and form meaningful connections within the global HI community.
The conference started with a welcome reception at the Hilton Liverpool City Center on Thursday evening, November 14, 2024. Conference sessions took place at the hotel during the day on Friday, November 15, and during the morning of Saturday, November 16. On Friday evening, there was a conference dinner for all attendees.
Special programming for young adults, teens, and children was also available during conference sessions, as well as babysitting.
Conference topics included:
- Learning from the Past and Planning for the Future
- Learning about the Genetic Causes of HI and New Novel Approaches to Uncovering the Genetic Cause of Congenital Hyperinsulinism
- Current and Future Medical Treatments
- HI-Stories – Family Presentations on Life with HI
- Children’s Hyperinsulinism Charity Work
- British Care Guidelines
- Congenital Hyperinsulinism BPSU Project
- Introducing the CHI Centers of Excellence
- Patient-Powered Research – The HI Global Registry
- The Collaborative Research Network
- Learning about Clinical Research from People in the Biotechnology Field
- Ask the Experts: HI Experts Assembled to Respond to Participants Questions
- Breakout Groups by Special Topics for HI Family Members and Clinicians
- Breakout groups by HI subtype
- The LightCure Project
Speakers included:
- Steff Bradley, Trustee, CHC
- Helen Couch, MB BChir MA (Cantab) MRCPCH, HI Parent, Paediatric Registrar at Cambridge University Hospitals NHS Foundation Trust, UK
- Sarah Dearman, Trustee, CHC
- Diva D. De León-Crutchlow, MD, MSCE, Chief of the Division of Endocrinology and Diabetes and Director of the Congenital Hyperinsulinism Center, CHOP
- Susann Empting, MD, Pediatric Endocrinology, Otto-von-Guericke University Magdeburg
- Sarah Flanagan, Professor of Genomic Medicine and Sir Henry Dale Fellow at University of Exeter Medical School
- Ciara Foy, Trustee, CHC
- Clare Gilbert, RN, Nurse Specialist, GOSH
- Sebastian Kummer, MD, Pediatric Endocrinologist at University Children’s Hospital Dusseldorf, Germany
- Prof. Dr. med. Peter Kühnen. Department of Pediatric Endocrinology and Diabetology, Berlin Center for Rare Diseases (BCSE), Charité Universitätsmedizin Berlin
- Klaus Mohnike, MD, Pediatric Endocrinologist, Professor at Otto-von-Guericke University Magdeburg
- Lauren Lopez. PhD, Registry Director
- Tai Pasquini, PhD, Chief Research Officer, CHI
- Julie Raskin, MA, Chief Research Office, CHI
- Senthil Senniappan MD FRCPCH MSc PhD, Consultant Paediatric Endocrinologist & Clinical Director for Endocrinology, Alder Hey Children’s Hospital, Liverpool
- Pratik Shah, MB BS, DCH, MRCPCH, PhD, Pediatric Endocrinologist at Barts Health NHS, Honorary Senior Lecturer at William Harvey Research, London, United Kingdom
- Charles A. Stanley, Founder of the HI Center, CHOP, Professor Emeritus of Pediatrics, University of Pennsylvania Perelman School of Medicine
You can view the full agenda here.
Highlights from the 2024 Family Conference:
Registration
Thanks to generous sponsors and donors, registration for the conference was free for all HI families, patients, doctors, and researchers, including program registration and admission to all conference sessions, lunch and dinner on Saturday, and lunch on Sunday.
