We understand the challenges of living with and managing hyperinsulinism (HI). It can be unpredictable, requiring constant vigilance, frequent blood sugar monitoring, and sometimes, strict dietary control, the need for continuous glucose monitoring, or even surgical removal of the pancreas and intravenous glucose infusions.
The relentless need for vigilance and care can be very costly, impacting the individual with HI and their caregivers. For children with HI, it can be especially tough, as parents must constantly monitor their child’s condition, often waking up multiple times during the night to check blood sugar levels and administer necessary treatments.
That’s why we’re dedicated to raising at least $30,000 for crucial HI research through the Million Dollar Bike Ride: to contribute to the development of better diagnostic tests for timely HI detection, improved management tools, new treatments, and ultimately, to find a cure. You can support HI research by donating here.
What is the Million Dollar Bike Ride?
The Million Dollar Bike Ride is a project of the Orphan Disease Center of the University of Pennsylvania, our partner in rare disease research who will match the first $30,000 we raise! So, every rider, volunteer, fundraiser, and donor makes a difference. Over the past ten years, CHI has raised over $743,000 for research grants in congenital hyperinsulinism thanks to you!
On Saturday, June 8th nineteen members of “Team CHIbra” gathered in Philadelphia to support HI research at the MDBR for the eleventh consecutive year. The event was a huge success, bringing us closer to our $30,000 goal! But we aren’t done yet…! There is still time to support a hyperinsulinism research project this year – we are accepting donations through the end of June. You can donate to an individual rider/walker’s page below or visit our donate page to make a gift.
Take a look at past CHI MDBR grant winners to learn more about the MDBR grant’s positive impact on hyperinsulinism research.
If you would like to support an individual rider/fundraiser’s page, please visit the following Team CHIbra campaigns:
- Diva De Leon-Crutchlow
- Terri Gelberg
- Mark Gross
- John Lord
- Katherine and Will Lord
- Heather McKnight
- Julie Raskin
- Hannah Raskin-Gross
- Elizabeth Rosenfeld
- Matthew Schmitz
- Craig Standen
- Dr. Charles Stanley
- Olivia Taylor
