2024 Rare Disease Day

Dreams Inspire Action

Rare Disease Day 2024, Thursday, February 29, is a day that celebrates and amplifies the voices of those living with rare diseases and people who advocate for them. This special occasion unites members of the rare disease community for one day of global efforts to raise awareness and advocate. We had a few ways that we celebrated this year – read on for more info on all of them!

In honor of Rare Disease Day, we asked our hyperinsulinism community: what do you dare to dream? We received submissions from all over the globe, demonstrating the international reach of our goals and dreams to improve the lives of those with hyperinsulinism. We can never stop dreaming for a future without lows, because dreams inspire action!View the slideshow below to read our community’s dreams.

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Our community gathered over Zoom to share these dreams together, and we shared some exciting upcoming developments for CHI! Below are just some of the wonderful faces that attended this conversation, including CHI staff, patients, parents, advocates, doctors, and researchers representing 20 different countries!

2024 Rare Disease Day Zoom meeting

CHI Rare Disease Day T-shirts

Did you miss out on our Rare Disease Day 2024 t-shirt drop>? You can still purchase a CHI-shirt at our Bonfire store.

Thank you to everyone who contributed their dreams, attended our Zoom gathering, purchased a CHI-shirt, and supported us over social media! YOUR dreams inspire OUR actions!


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