Contribute to HI Research through the HI Global Registry (HIGR): One of the most impactful ways you can get involved is by joining the HI Global Registry (HIGR). HIGR is the only patient-powered HI registry that was created specifically to capture what it’s like to live with HI — from birth to diagnosis to treatment to everyday life. By completing surveys in HIGR, you’re helping researchers and medical professionals better understand HI, improve care, and progress toward new and better treatments. You can complete the surveys at your own pace, from anywhere in the world, using a computer or mobile device. If you would like to learn more about the benefits of participating in HIGR from people in the HI community, we invite you to meet our HIGR Ambassadors.
Join our email list: Stay in the loop with CHI news, upcoming events, and the latest updates in research and advocacy. Our email list is the best way to keep connected with what’s happening in the global HI community.
