CHI invites you to join us in raising awareness of HI and advocating for the needs of people who live with the condition. There are many ways. Here are some of our top suggestions:
- CHI urges you to read the Collaborative Research Network Advocacy Statement and List of Essential Medical Care, Medication, Supplies and Services for people with congenital hyperinsulinism (HI).
- This Statement and List of Essential Medical Care, Medication, Supplies and Services for people with Congenital Hyperinsulinism (HI) is prepared as part of Congenital Hyperinsulinism International’s (CHI) Collaborative Research Network (CRN) initiative to improve the lives of children, young people, and families experiencing a most challenging illness. The CHI CRN includes an international group of HI experts and patient advocates working together to try and solve the most important research questions that will lead to the best outcomes for people living with HI. The need for this statement arises from discussions with hundreds of parents, young people, doctors, nurses and other professionals from around the world.
- Share the links to these guidelines with all the medical professionals you know: general pediatricians, endocrinologists, neonatologists, neurologists, obstetricians, nurses, midwives, and others. Urge newborn nurseries and neonatal intensive care units to adopt these guidelines:
- Share CHI’s Statement on the Hypoglycemia Guidelines.
- Download, print, display and share the CHI Posters (“What is Congenital Hyperinsulinism?”). Available in 25 languages.
- Share CHI publications to raise more detailed awareness of the condition: Publications – Congenital Hyperinsulinism International
- Share your stories. For more information and ideas visit our HI-Stories page
- Share HI Videos.
