In early 2024, HI mom Faithelen Fuentes sat down with CHI Communications Associate Lily Barnett to discuss her daughter Daphne Solitario’s medical journey. It starts in the fall of 2023, when the Fuentes-Solitario family traveled from Cebu City, Philippines to Philadelphia, PA in order to receive treatment at Children’s Hospital of Philadelphia (CHOP). Faithelen describes the initial challenges in understanding Daphne’s hyperinsulinism and Beckwith-Wiedemann Syndrome diagnoses, as well as the ways in which the HI community came together virtually to help through CHI’s Family Support Forum on Facebook.
