HI-Stories: Berra’s Story

My Sugar Baby, “BERRA”

Berra was born on February 22nd, 2009 at exactly 2:00 AM. She weighed 3.525 kg (7 pounds, 12 ounces and she was 50 cm (19.68 inches) tall. She was born 3 weeks early. In the evening on the day she was born, her blood glucose level was very low, 19, and she had seizures and was transferred to another hospital.

At the second hospital, she quickly received a diagnosis of hyperinsulinism (HI). Berra was the third child in Vienna to be diagnosed with this disease.

Her physicians tried all types of medications common for HI patients, over the course of a month. She did not respond to any of them. After that, a PET/CT Scan was done, and it was found that Berra had the diffuse form of HI. Two months later, Berra was operated on and 95% of her pancreas was removed.

It took 3 weeks to get off of all the intravenous infusions, including glucose. After that, she was not on any medications and started drinking from the bottle. After 3 months in the hospital, we were finally released and able to go home. She did very well until she was almost 6. A blood test before her 6th birthday showed that her HbA1c was 7.8, which is high.

 Since then, Berra has been a type III diabetic and has an insulin pump which administers insulin called APIDRA. Since November 2018, she has also been using a continuous glucose monitor, and soon, she will get the new Medtronic MiniMed 670G insulin pump.

That’s the short story of my sugar baby!

stories of kids with hyperinsulinism