Congenital Hyperinsulinism International
                   

Jobs

Congenital Hyperinsulinism International (CHI) is hiring. We are seeking two key team members:

Digital Community Managerview job listing

Research and Policy Associateview job listing

This is a great opportunity to work to improve the lives of people living with a rare disease and to join the CHI team. You can read more about each position and how to apply for it below.

If you are interested in applying, please send your cover letter and resume to jobs@congenitalhi.org by January 25, 2021 and put either “CHI Digital Community Manager Position” or “CHI Research and Policy Associate Position” in the subject line. If you are applying for the Digital Community Manager Position please also include a social media post and/or graphic design sample. We will carefully consider your application during the initial screening and will contact you if you are selected to continue in the recruitment process. Thank you so much for your interest in this position.


Current Job Listing: Digital Community Manager

Nonprofit Overview: Congenital Hyperinsulinism International (CHI) is a leading organization dedicated to improving the lives of children with congenital hyperinsulinism (HI). HI is a life-threatening disorder that causes dangerously low blood sugar levels due to the over-production of insulin. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death. CHI supports research towards better treatments and a cure, advocates for timely diagnosis and improved standards of care and supports people living with HI every step of the way.

Position Summary: Joining the CHI team as CHI Digital Community Manager is a great opportunity to apply your passion for social and your artistic talents to exciting and impactful projects in the rare disease space. The Digital Community Manager will work together with CHI staff to plan and execute dynamic multimedia social campaigns, relying heavily on analytics and evolving nonprofit best practices and benchmarks in collaboration with key staff, under the supervision of the CHI Associate Director.

Location: The CHI Digital Community Manager will work remotely from home with limited travel. A preference will be given to individuals who live near Montclair, NJ, western MA, northern CT, Washington, DC, or CA, though other locations will be considered for the right candidate.

RESPONSIBILITIES:

  • Develop, produce, publish and share all daily social content (original copy, images, graphics, and social video) that builds meaningful connections with CHI’s international community and encourages targeted audiences to take action through event registration, participate in research opportunities, donating, respond to content requests, sharing CHI content and raising awareness here so the specific organization goals are outlined.
  • Research, plan and produce dynamic multimedia social campaigns (organic and paid), relying heavily on analytics and evolving nonprofit best practices and benchmarks in collaboration with key staff, under the supervision of the Associate Director.
  • Craft compelling narratives across Facebook, Instagram, Twitter, LinkedIn, and others with a strong understanding of how to match the message to the medium.
  • Produce and provide video and graphic content for CHI conferences, meetings, fundraisers, and other events.
  • Manage social media calendar scheduling, adjusting daily as news and new developments unfold.
  • Identify, develop and implement strategies to nurture and audience growth, and optimize content reach and performance.
  • Track and report on performance and results of campaigns to ensure goals are being met.
  • Contribute to and maintain social media and digital guidelines, tip sheets and online groups.
  • Support CHI Staff as needed with proofreading, research, writing and editing and assist with other projects as assigned.
  • Must be a strong community manager, engaging and responding to followers in timely fashion while brainstorming new ways to encourage social conversations.
  • Must have a passion and significant energy for social media with detailed knowledge and demonstrated experience around existing and emerging social platforms.

REQUIREMENTS/QUALIFICATIONS:

  • Bachelor’s degree in Journalism, Communications, Marketing or related field.
  • Marketing and communications experience and social media marketing management, either at a nonprofit, digital agency or news organization.
  • Experience with design applications such as InDesign and Photoshop along with apps that assist in content creation.
  • Experience utilizing community management tools (such as Sprout Social) and listening tools (such as TweetDeck).
  • Experience creating optimized video for social using editing software (such as Adobe Premiere) or social video editing apps.
  • Passion for digital media, storytelling, and community engagement with audience sensitivity.
  • Excellent written and verbal communications skills with a strong understanding of audience, framing, messaging and branding.
  • Strong communication and collaboration skills as well as meticulous attention to detail.
  • Solid understanding of social media metrics, audience targeting, analytics and best practices.
  • High level of comfort working in a fast-paced environment with a flexible, all-hands-on-deck attitude.
  • Comfort in an environment of professional colleagues and strong volunteer leadership and engagement.
  • Familiarity with social media landscapes relevant to CHI’s social presence and the rare disease community is a plus.

CHI is an Equal Opportunity Employer. We respect and seek to empower each individual and support the diverse cultures, perspectives, skills and experiences within our workforce.

Click here to download a PDF of the Digital Community Manager job listing.


Current Job Listing: Research and Policy Associate

Nonprofit overview: Congenital Hyperinsulinism International (CHI) is a leading organization dedicated to improving the lives of children with congenital hyperinsulinism (HI). HI is a life-threatening disorder that causes dangerously low blood sugar levels due to the over-production of insulin. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death. CHI supports research towards better treatments and a cure, advocates for timely diagnosis and improved standards of care and supports people living with HI every step of the way.

Position summary: Joining the CHI team as a research and policy associate is a great opportunity to participate in exciting and impactful research and advocacy projects in the rare disease space. The program coordinator will work together with CHI staff to support projects related to research, advocacy, and awareness. The CHI research and policy associate will report to the research and policy director.

Location: The CHI research and policy associate will work remotely from home with limited travel. A preference will be given to individuals who live near Montclair, NJ, western MA, northern CT, Washington, DC, or CA, though other locations will be considered for the right candidate.

RESPONSIBILITIES:

  • Support engagement and recruitment for the HI Global Registry (HIGR) utilizing best-practices for registry recruitment.
  • Complete the NIH Human Subjects Research training to learn about ethical research best practices.
  • Contribute to data analysis and research projects for the HIGR and the collaborative research network.
  • Help the CHI staff plan and execute major events including conferences (virtual and in-person) and the Sugar Soirée.
  • Support projects associated with the collaborative research network, including stakeholder communication and disseminating project documentation.
  • Create surveys, forms, and applications using Submittable, SurveyMonkey, or other software to support research, the Centers of Excellence Program, and other programs as needed.
  • Contribute to the program evaluation for the Centers of Excellence Program and the collaborative research network.
  • Collaborate with CHI staff and other stakeholders to develop effective ways to communicate the importance of participating in the HIGR.
  • Assist on-going advocacy and awareness projects and help launch new projects to increase public awareness for CHI.
  • Support other projects and initiatives as needed based on CHI priorities.

REQUIREMENTS/QUALIFICATIONS:

  • A bachelor’s or bachelor’s and master’s degree in public health, communications, public affairs, policy, genetics, health sciences, or another relevant degree and/or experience.
  • Strong interest in HI, rare diseases, research, genetics, medicine, policy, or advocacy.
  • Familiarity with the HI or rare disease patient experience or a willingness to learn relevant medical terminology.
  • Ability to work collaboratively with individuals in a remote work environment.
  • Capacity to adapt to a dynamic work environment.
  • Strong self-guided work habits and ability to track multiple simultaneous projects.
  • Excellent knowledge of Excel, Microsoft Word, and PowerPoint.
  • Good verbal and written communication skills.
  • A positive attitude and enthusiasm for learning new skills, terminology, and concepts.

CHI is an Equal Opportunity Employer. We respect and seek to empower each individual and support the diverse cultures, perspectives, skills and experiences within our workforce.

Click here to download a PDF of the Research and Policy Associate job listing.