Join Team CHIbra for the 8th year in raising funds for research to find tests that would increase timely diagnosis, tools for better management of hyperinsulinism, new treatments, and one day, a cure. Scroll down for event info …
“It doesn’t matter where you are in your journey with hyperinsulinism … when a low hits you … it hits you hard.” A #RareDiseaseTruth from HI Mom Kiersten Smith.
Congenital hyperinsulinism (HI) is a life-threatening disorder that causes dangerously low blood sugar levels. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death. The critical need for research for diagnostic tests that would increase timely diagnosis of HI, tools for better management of HI, new treatments, and one day, a cure, is as important as it has ever been.
That is why we hope you can join Team CHIbra in raising HI research funds again this year. Our fundraising timeline is short to reach our overall goal of raising $20,000 by June 30, 2021. Every donation counts – big and small!
Your fundraising dollars will be used for research to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism. The first $20,000 we raise is matched by the University of Pennsylvania, our partner in funding research. Thanks to all of you, CHI has raised over $525,000 for congenital hyperinsulinism research. Let’s keep funding research for a brighter future!
How can you support Team CHIbra this year?
- Donate to the Team! You can donate here, or on our JustGiving Page.
- Join the Team and create your own fundraiser from Just Giving! Just click on the Orange Start Fundraising button to the right on the home page and you’ll be on your way to creating your own Team CHIbra Raring to Go for CHI fundraising page that you can share with friends and family. Maximize your fundraising impact! Ask your friends and family to support our shared cause. Personalize your fundraiser with stories, photos, and videos. You can manage your fundraiser from start to finish on your personal fundraising page.
- Or you can create your own fundraiser on Facebook or Instagram! You can view our Team CHIbra Facebook Fundraiser here. Remember we receive 100% of all donations made through Facebook and Instagram!
- Do you have a stationary bike? You can join Team CHIbra in a virtual ride with the rest of the Million Dollar Bike Ride Riders on June 12 at 11:00 AM EDT – you can register for the ride here.
Team CHIbra is raising these funds as part of the Million Dollar Bike Ride initiative, a project of the Orphan Disease Center of the University of Pennsylvania. Learn more at https://www.milliondollarbikeride.org/.
Join Team CHIBra and get going today! All monies must be raised by June 30, 2021. Need a hand? Call Jennifer at 973-544-8372 or email [email protected] with any questions!
Past fundraising efforts have resulted in the following research grants, which are outlined below, and more details can be viewed here.
- 2020 Grant Recipient: Dr Indraneel Banerjee, University of Manchester, Royal Manchester Children’s Hospital, for maximizing the utilization of the Hyperinsulinism Global Registry (HIGR).
- 2019 Grant Recipient: Thomas Smith, PhD, University of Texas, Medical Branch, for new therapeutic treatments for the hyperinsulinism/hyperammonemia syndrome (HI/HA).
- 2018 Grant Recipient: Dr. Amanda Ackermann of the Children’s Hospital of Philadelphia, for Vitamin E supplementation in hyperinsulinism/hyperammonemia syndrome.
- 2017 Grant Recipient: Dr. Diva De León-Crutchlow of the Children’s Hospital of Philadelphia and the University of Pennsylvania for a pilot study of the bihormonal bionic pancreas for the treatment of diabetes post-pancreatectomy in children with congenital hyperinsulinism.
- 2016 Grant Recipient: Dr. Changhong Li of Children’s Hospital of Philadelphia, for drug development for a treatment for glutamate dehydrogenase hyperinsulinism.
- 2015 Grant Recipient: Mark Dunne, BSc, PhD, of the University of Manchester, for research towards precision medicine in treatment of congenital hyperinsulinism in infancy.
- 2014 Grant Recipient: Dr. Diva De León-Crutchlow for a pilot study of the efficacy and safety of sirolimus in the treatment of congenital hyperinsulinism.
