A Very Special Cocktail Party for Rare Disease Day, 2014

The Very Special Cocktail Party for Congenital Hyperinsulinism International took place on Friday, February 28th. It took place at the Van Vleck House in Montclair, New Jersey. 120 people attended from Texas, Georgia, New York, Pennsylvania, Massachusetts and New Jersey. Guest speakers included Mireille and Brian Ptak, HI parents; Doctors DeLeon, Stanley, and Thornton; Nurse Practitioner, Enyo Dzata, and CHI Intern Rianna Sommers presenting a video from an international group of HI families. At the event some HI families and individuals met for the first time, creating new bonds while old friends got to catch up, and the CHI community was strengthened by the support of all those who attended. We learned about new research and initiatives, the work being done to increase early diagnosis, and challenges and triumphs of HI families. The event was also a very successful fundraiser to support CHI. The event was made possible by our sponsors, XOMA, BioMarin, Sean and Sue Cullinan, and Amy Graydon and Dan Kaplan, and everyone who donated to the event.

Below is a slideshow with highlights from the event:

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