We are excited to announce that registration for the 2025 Congenital Hyperinsulinism Family Conference in Copenhagen, Denmark is open! CHI is planning this conference with the assistance of Henrik Christesen, Professor, DMSc, Phd, MD of the Hans Christian Andersen Children’s Hospital/Odense University Hospital in Odense, Denmark.
Jump ahead to the registration here.
The CHI staff, world-renowned physicians, researchers, congenital hyperinsulinism (HI) specialists, HI family members, and CHI advocacy leaders will be presenting at the conference. There will also be interactive sessions where HI families can share their stories and experiences.
The CHI Family Conferences are a fantastic opportunity to learn more about all aspects of the condition and to meet and get to know members of the global HI community. It is also an excellent opportunity for HI families to meet and share their experiences.
Our Congenital Hyperinsulinism Family Conference in Copenhagen, Denmark, will be available to watch from anywhere in the world via livestream! We will be streaming a portion of our afternoon session on Friday, May 9th at 13:00 CEST | 12:00 GMT | 7:00 EST | 15:00 GST | 19:00 CST. AI closed captions in multiple languages will be available. Registration for the livestream is available here.
A full list of confirmed speakers will be posted here in the coming weeks.
Event Highlights
- Educational Sessions – Gain insights from HI medical professionals on HI causes, treatment options, and research advancements.
- Q&A Panels – Ask questions directly to leading HI experts including clinicians, geneticists, and researchers.
- Family Networking – A chance for parents, caregivers, and patients to connect, share stories, and build a support network.
- Breakout Sessions – Participate in small group discussions on specific HI-related topics.
- Medical Updates & Research Insights – Learn about the latest clinical trials, emerging therapies, and genetic discoveries.
- Interactive HI-Story Sharing – HI families will have the opportunity to share their journeys and experiences.
- Kid-Friendly Activities – will include childcare and activities to engage children and teens living with HI.
The conference will start with a welcome reception on Thursday evening, May 8, 2025, at the Scandic Spectrum Hotel, located at Kalvebod Brygge 10, 6 sal, 1560 København, Denmark. Conference sessions will take place at the hotel during the day on Friday, May 9th between 8.30 and 17.00, and on Saturday, May 10th between 9.00 and 12.00. A conference dinner will be held on Friday evening for all attendees.
Conference topics may include:
- Learning About the Genetic Causes of HI
- HI Stories from Individuals and their Families who Live with HI
- Current and Future Treatments
- Learning about Clinical Research from Members of the Biotech Industry
- Ask the Experts
- Small Group Discussions by treatment, stage of life, and shared experiences
- Participating in Patient-Powered Research
- Learning about CHI, Your Advocacy Organization
- Quality of Life
Confirmed Speakers include:
- Oliver Blankenstein, MD, Pediatric Endocrinologist, Medical Director, Charité – Universitätsmedizin Berlin
- Klaus Brusgaard, PhD, Prof Southern Danish University, Lillebaelt Hospital
- Henrik Christesen, MD, PhD, Consultant and Professor, Hans Christian Andersen Children’s Hospital, Odense University Hospital
- Antonia Dastamani, MD, PhD, Pediatric Endocrinologist, Lead, Congenital Hyperinsulinism Service, Great Ormond Street Hospital for Children (GOSH)
- Martin Gotthardt, Professor of Nuclear Medicine, Radboud University Medical Center, Nijmegen, The Netherlands
- Klaus Mohnike, MD, Pediatric Endocrinologist, Professor at Otto-von-Guericke University Magdeburg
- Lauren Lopez. PhD, Registry Director
- Julie Raskin, MA, Chief Research Office, CHI
- Lora Van Arsdell-Bartocci, PsyD, LCSW, Research and Support Specialist, CHI
Registration
Thanks to generous sponsors and donors, registration for the conference is free for all HI families, patients, doctors, and researchers, including program registration and admission to all conference sessions, dinner on Thursday, lunch and dinner on Friday, and lunch on Saturday.
Please register here as soon as possible but no later than April 25, 2025.
Hotel Information
CHI has reserved a block of rooms at the Scandic Spectrum Hotel in Copenhagen –The rate is DKK 1,645/night per night for a single room (excluding tax, fees, and parking) on Thursday, May 8, and Friday, May 9, 2025. To be added to the reservation list, please indicate this need on your registration form. You must also request a room by April 1, 2025. You will be able to pay for your room at check-in.
Scholarships
There are limited scholarships for HI families needing financial support and traveling from out of town to stay at the hotel the nights of May 8 and 9 while attending the conference. Families interested in these scholarships should indicate this on their registration form and fill out our online scholarship form by April 1, 2024. If awarded a scholarship, CHI will reserve the rooms for these families. You will need to present a credit card at check-in for incidentals. If this will be difficult, please let us know.
