The annual Congenital Hyperinsulinism International Endocrine Society Meeting will take place in Berkeley, California on June 15-16, 2013. For families living with the condition, congenital hyperinsulinism (HI), this meeting is a must. Over the course of these two days, families have unprecedented access to leading researchers and clinicians in the field as well as an opportunity to share information and experiences with other HI families.
This year, leading world specialists in the field of HI will present on groundbreaking research and cutting edge practice in the field. HI patients and family members will also hear from industry voices involved in the development of investigational medications that have the potential to be of great value to HI patients and their families. HI parent experts will also present on living with the condition at home and at school.
Leading pediatric endocrinologists who will be attending and speaking include Dr. Louise Conwell of Royal Children’s Hospital in Brisbane Australia, Dr. Diva DeLeon of the Children’s Hospital of Philadelphia (CHOP), Dr. Khalid Hussain of Great Ormond Street Hospital in London, Dr. Paul Thornton of Cook Children’s in Fort Worth, Texas, and Dr. Morey Haymond of Texas Children’s Hospital in Houston, TX. Susan Becker, RN from CHOP will also be speaking.
Parent experts include Dina Tallis, elementary school principal who has created specialized materials on managing HI at school and Davelyn Hood who is both a community health physician and parent of an HI child.
In addition to all the learning that takes place in the meeting sessions there is ample time for socializing and getting to know other HI families. These experiences have been so valuable to family members as they stay current on all the happenings in the field and create bonds with other HI families. HI children and their siblings who have attended these events also get a tremendous amount out of these experiences as they come to understand there are others just like them.
The meetings will take place at the Hotel Shattuck Plaza in Berkeley, California on Saturday, June 15 from 6:30-9:30 PM and Sunday, June 16, 9:00-11:00 AM. Registration is $30 per person and payment can be made online. Information is available on the CHI website https://congenitalhi.org/berkeleyevent.php. There are still a few hotel rooms available in the block and it is still possible to register.
The meetings are made possible thanks to generous donations by Xoma, Teva, Biomarin, and Athena Diagnostics.
The meetings are offered by Congenital Hyperinsulinism International (CHI), the organization supporting congenital hyperinsulinism patients and their families since 2005. CHI is guided in its work by its scientific advisors comprised of eleven leading congenital hyperinsulinism
specialists.
For more information you can contact me at 973-744-8372 or at jraskin@congenital.org.
-Julie Raskin
