Julie Raskin 
Yesterday may have been close to the start of a long weekend for many Americans, but a group of CHI patient advocates gathered in Washington, DC, for an energetic day of action before celebrating the nation’s birthday next weekend. It was the first time we spent an entire day on Capitol Hill in Washington, D.C … Read more
The following was shared by Pamela Weber-Leaf: Hyperinsulinism Awareness Day on Sunday, June 7 was the perfect time to host CHI’s initial viewing party for “Turn Hours Into a Lifetime,” the documentary short film about hyperinsulinism (HI) developed through the organization’s participation in the European Union-funded LightCure project. I was so pleased to have old … Read more
It was 100 degrees Fahrenheit when we arrived in Philadelphia on Friday evening to be a part of the Million Dollar Bike Ride. Early Saturday morning, when we gathered for the ride, it was somewhat cooler, but the morning still sizzled with expectation and excitement. Through early morning bleary eyes, the Team CHIbra riders are … Read more
The following is a guest blog post by Anna: On June 7th each year, I take a moment to pause and recognize the condition, which transformed my life – a condition that is invisible most of time until a hypo announces itself without warning. This rare condition, affects each of us differently, yet we are … Read more
The following is shared by HI mother Maureen: Mother’s Day comes around quietly each year, in a beautiful time of the year, spring. If all is well, it does not ask too much from us as mothers, but it always invites me into a moment of reflection. Caring for a child with HI is not … Read more