Julie Raskin 
The following is shared by Anna Nicolaou: For individuals living with hyperinsulinism (HI), nutrition is not optional, but a medical necessity; a lifeline and access to proper nutritional guidance can mean the difference between stability and crisis. The right foods, the right timing, and the right support can prevent dangerous hypoglycaemic episodes and protect long-term … Read more
The following post is by Kimberley Pfaff: In most cases, a sibling bond is created right as the youngest is born. They can quickly become best friends, and in the end will share more support with one another than with their own parents. For Ricky, my son born with HI, his brother Mickey wasn’t only … Read more
There is a remarkable amount of activity right now focused on understanding what it’s really like to live with congenital hyperinsulinism (HI). Through the HI Global Registry (HIGR) — the patient-powered research project CHI launched in 2018 — we’ve been able to capture the lived experience of HI in a detailed, scientific, and meaningful way. … Read more
The following was shared by CHI Development Director Pam Weber-Leaf: CHI had a chance to raise hyperinsulinism (HI) awareness and connect with our peers in the rare disease space all over the Northeast corridor of the United States last month as part of international Rare Disease Day (RDD) 2026 observances. On Feb. 20, I had … Read more
Blog post by HI father Saqib: I am writing to share the wonderful achievement of my daughter, Abeera, who has been bravely dealing with hyperinsulinemia since birth. She has secured first position in her class. This accomplishment is truly a blessing and a very proud moment for our family. Abeera was diagnosed when she was … Read more