Julie Raskin 
The following is a guest post by Felecia Nugent: Hi! My name is Felecia and I am 35 years old living with HI! I was diagnosed with HI when I was 28 yrs old, after my daughter Hannah was born and diagnosed with HI. I was a very sick child that was misdiagnosed with hypoglycemia … Read more
This is a guest blog post from Shohei Matsumoto of the Japan Hyperinsulinism Patients and Families Association (JHIA). “In order to secure support from the government for the challenges faced by families of patients with hyperinsulinemic hypoglycemia, our association submitted a “Request for Research on Hyperinsulinemic Hypoglycemia” to the Minister of Health, Labour and Welfare. … Read more
As told by Sandra: Portugal, February 2016 was the beginning of a journey that had actually started in my mind ever since it was clear in my heart that I wanted my family to be complete with a child. Finally, Guilherme, my baby boy, was here. But all of a sudden, he wasn’t. Instead of … Read more
“Did you know that in the old days, they used to remove 98% of the pancreas?!” This quote comes from Dr. Adzick’s imagined future, a world where babies born with Hyperinsulinism (HI) have access to more advanced medications. A world where they no longer endure invasive surgeries or harsh side effects from current therapies. He … Read more
The 2025 CHI Family Conference in Philadelphia happened to be held during a gorgeous stretch of weather. Jennifer Schmitt, CHI’s COO, and I traveled together by car from Glen Ridge, NJ, arriving around noon on October 3, ready to set up at the Philadelphia Sheraton University City on the edge of the Penn campus and … Read more