Congenital Hyperinsulinism International

The 2019 CHI Family Conference in Philadelphia

Congenital Hyperinsulinism International (CHI) and the Childrens Hospital of Philadelphia (CHOP) are hosting the 2019 CHI Family Conference in Philadelphia, PA on September 6-8, 2019. The conference will take place at the Colket Translational Research Building at CHOP located at 3501 Civic Center Blvd, Philadelphia, PA 19104 and the Sheraton Philadelphia University City located at 3549 Chestnut Street, Philadelphia, PA 19104.

The CHOP Hyperinsulinism Center team, additional world-renowned physicians, researchers, and congenital hyperinsulinism (HI) specialists, HI family members, and CHI advocacy leaders will be presenting at the conference. There will also be interactive sessions where HI families will have opportunities to share their stories and experiences. The family conferences are a fantastic opportunity to learn more about all aspects of the condition and to meet and get to know members of the global HI community.

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The CHI CHOP Family Conference in Philadelphia


Conference activities include:

  • Welcome Reception and a book reading by the author of Sugarblind by Richard Sonnenmoser
  • HI Community Reception and Dinner
  • Many Networking Opportunities

Conference topics include:

  • Understanding the Role of Insulin in the Human Body
  • Understanding the Underlying Causes of Hyperinsulinism
  • Understanding your Genetic Report
  • Current HI Treatment Options
  • Learning about the Different Types of HI
  • Patient Powered Research: The HI Global Registry
  • Surgery and the PET Scan
  • Updates on New, Investigational Studies
  • Safety and Cure Fasts
  • Managing HI at School
  • Feeding Issues and Nutrition
  • HIStories – Sharing your Stories
  • Small break-out sessions on many important HI topics
  • Speed Dating with the Specialists – Get Your Questions Answered
CHOP CHI conference attendees


Confirmed Speakers for 2019 CHI Family Conference Philadelphia

Amanda Ackermann, MD, PhD – Pediatric Endocrinology, HIHA

N. Scott Adzick, MD, MMM, FACS, FAAP – Surgery

Sarah Barnes, MS – Diet and Nutrition

Susan Becker, BSN, RN, CCRC – Research

Amanda Bennett, MD, MPH – Developmental Pediatrics

Linda Boyajian, CRNP – Pediatric Endocrinology, HI

Liesje N. Carney, CSP, LDN, Diet and Nutrition

Henrik Christesen, MD, Pediatric Endocrinology, HI

Sherri Cohen, MD, MPH, FAAP, Feeding

Nicholas Cole, HI Community Speaker

Courtney Copsey, HI Community Speaker

Ed Damiano, PhD, Beta Bionics

Diva D. De León-Crutchlow, MD, MSCE, Pediatric Endocrinology, HI

Brian Grant, BSN, RN, CDE, CPT, Technology and Devices

Davelyn Hood, MD, MBA, HI Global Registry and HI Patient Advocacy

Jennifer Kalish, MD, PhD, Genetics and Syndromic HI

Stephanie Leonetti, LSW, Social Work

Katherine Lord, MD, Pediatric Endocrinology, HI

Asim Maqbool, MD, Gastroenterology

Heather McKnight-Menci, CRNP, Pediatric Endocrinology, HI

Julie Raskin, MA, HI Patient Advocacy and HI Global Registry

Ben Raskin-Gross, HI Community Speaker

Richard P. Sonnenmoser, MA, Writing

Charles A. Stanley, MD, Pediatric Endocrinology, HI

Lisa States, MD, PET Scan and Radiology

Nicole Stewart, RN, Pediatric Endocrinology, HI

Dina Tallis, EDD, HI and School

Paul Thornton, MD, Pediatric Endocrinology, HI

Kathleen Ackermann Wegener, MS, HI and School


The first event of the weekend will be a Meet and Greet Friday, September 6 from 6-7:30 pm followed by Richard Sonnemoser reading from Sugarblind, a memoir about becoming a father – first to sick child and then a healthy one.

The Conference sessions will begin at 9 AM Saturday, September 7 and will end on Sunday, September 8 at 3 PM.

The registration for the conference is $50 per adult and teenager, which includes program registration and admission to all conference sessions, lunch, and dinner on Saturday, and lunch on Sunday. The registration for children 12 and under is free. There is a family rate of $100 for families of 2 or more adults and teens, including any children under 12 of course.

There will be babysitters at the conference to watch children while parents are attending conference sessions. Children will join their parents for snacks and meals, and parents will be responsible for all medical care. If you are interested in babysitting, please register for the conference and indicate that need by August 6, 2019.

Sheraton Hotel in Philadelphia


2019 Sponsors of the CHI Family Conference

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