2018 CHI Family Conference in Fort Worth, Texas

Please join us!

Congenital Hyperinsulinism International (CHI) and Cook Children’s invite you to the 2018 Congenital Hyperinsulinism Family Conference, July 27-29, 2018 in Fort Worth, Texas.

This is your opportunity to hear from world-renowned physicians and researchers who treat children with congenital hyperinsulinism, and to meet and share experiences with other families that have children with HI.

The conference will include:

  • A Meet and Greet Friday Evening
  • A Review of Current Treatment Options
  • Speed Dating with the Specialists
  • A Presentation on Understanding your Genetic Report
  • A Session on Coping with the Stress of Parenting a Child with Chronic Health Issues
  • Update on Investigational Medications and Congenital Hyperinsulinism Research
  • HI-Stories: Families Share their Experiences of living with HI
  • Learning about Managing HI at School
  • Family Dinner on Saturday Night
  • Sunday Breakfast Session
  • Sessions on many more topics

Click here for the conference agenda.

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Participants and Presenters at the 2016 Congenital Hyperinsulinism Family Conference in Paris
Participants and Presenters at the 2016 Congenital Hyperinsulinism Family Conference in Paris

CHI Family Conference in Fort Worth TX
This year’s Family Conference takes place in Fort Worth, Texas

Conference Faculty

The Conference Faculty will be made up of members of the renowned Cook Children’s Congenital Hyperinsulinism Center, CHI Patient Advocates, and other world leaders in the field of congenital hyperinsulinism.

The Cook Children’s Center Faculty will include:

Paul Thornton, MD
Medical Director, Endocrine and Diabetes, and Hyperinsulinism Center

Jonathan Nedrelow, MD
Associate Medical Director, Neonatology

John Uffman, MD
Pediatric Surgeon

Lisa Truong, CPNP
Endocrine and Diabetes, and Hyperinsulinism Center

Dana Shafir, PhD
Clinical Therapist

Ryan Murphy, LCSW
Social Worker

Katie Kennedy MS, RD, LD, CDE

Kathy O’Bryan MS, RD, LD

Courtney Reynolds, MPH CPH
Research Coordinator

Guest Faculty will include:

Diva De León, MD
Medical Director, Hyperinsulinism Center
Philadelphia, PA

Charles Stanley, MD
Founder, Hyperinsulinism Center, CHOP
Philadelphia, PA

Pratik Shah, MD, PhD
Hyperinsulinism Centre, GOSH
London, England

Klaus Mohnike, MD
Pediatric Endocrinologist
Otto-von-Guericke-University Magdeburg
Magdeburg, Germany

Dina Tallis, EdD
Director of Elementary Education & Student Support Services
Imlay City Schools, Detroit Area, Michigan

Davelyn Hood, MD, MBA
President, Board of Directors
Congenital Hyperinsulinism International

Julie Raskin, MA
Executive Director
Congenital Hyperinsulinism International

For the Kids

There will be volunteer babysitters at the conference for children with HI and their siblings. The babysitting will be in adjoining rooms. Children will join their parents for snacks and meals, and parents will be responsible for all medical care.

Teens and young adults are welcome at the conference.


The conference will be held at Hilton Garden Inn Fort Worth Medical Center hotel, conveniently located on I-30, minutes from Texas Christian University, and near the Fort Worth Stockyards and Fort Worth Zoo in downtown Fort Worth. This south Fort Worth hotel is only 30 minutes from the Dallas/Fort Worth International Airport (DFW) and Dallas Love Field Airport (DAL), situated in the Medical Center campus.


Join us beginning in the evening of Friday, July 27 for the Meet and Greet from 7-9 pm. The conference will end at noon on Sunday July 29.

Fort Worth, Texas
Shops on Houston Street in downtown Fort Worth


The registration for the conference is $50 per adult and teenager, which includes program registration, Meet and Greet Friday event, Continental breakfast, lunch, and dinner on Saturday, and a working breakfast on Sunday. The registration for children 3-12 is $25 and includes the conference meals. Children under 3 are free. There is also a family rate of $150 for Families of 4 or more.

Attendance is limited to the first 150 people, so don’t delay in sending in your completed registration form.

About Cook Children’s

Cook Children’s Hyperinsulinism Center is led by Medical Director Paul Thornton, M.D., one of the nation’s few physicians with extensive clinical and research experience in CHI. In the past, saying the word “cure” in relation to congenital hyperinsulinism (CHI) was only a dream. Now, as one of the premier programs in the country, Cook Children’s Hyperinsulinism Center has cured more than 90 percent of our focal CHI patients.

As one of the premier programs in the country, Cook Children’s Hyperinsulinism Center has a world renowned team that’s devoted to providing quality, family-centered care to the children we serve. Our highly skilled, multidisciplinary team includes physicians specializing in endocrinology, pediatric surgery, neonatology, neurology, gastroenterology, pathology and radiology. Our team is supported by a dedicated CHI nurse practitioner, social worker, clinical therapist, Child Life specialist, nutritionists and feeding and speech therapists. Together, this team works closely with patients and families to provide the most effective treatment plan possible.

Views of Cook Children's in Fort Worth Texas
Cook Children’s in Fort Worth, Texas

Our thanks to our CHI Family Conference 2018 Sponsors