2024 Rare Disease Day

Dreams Inspire Action

Rare Disease Day, this year on Thursday, February 29, is a day that celebrates and amplifies the voices of those living with rare diseases and people who advocate for them. This special occasion unites members of the rare disease community for one day of global efforts to raise awareness and advocate. We have a few ways that we are celebrating this year – read on for more info on all of them!

In honor of Rare Disease Day, we want to know: what do you dare to dream? We loved what our community shared about their dreams with us last year, so we thought we would ask again. We can never stop dreaming for a future without lows, because dreams inspire action!

You can share dreams related to research or treatment goals for HI, wishes for future occupations, plans for hobbies, or anything at all.

Scroll down below the slideshow for more information.

I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024I Dare to Dream campaign for Rare Disease Day 2024

I Dare to DreamSteps to participate:

1. Finish the following statement: “I dare to dream …”
2. Pick a recent photo of yourself (alone or with a loved one) OR record yourself sharing your dream on your phone and send us the video.
3. Email the completed statement and photo or video to lbarnett@congenitalhi.org with an acknowledgment that it is okay for CHI to share on our website and/or social media.

Participation in this campaign not only helps us celebrate the community but plays a vital role in raising awareness for HI – so that our dreams for a future without lows continue to inspire action in the scientific and advocacy communities.


CHI Rare Disease Day T-shirts

Join our movement for action!

You can order a 2024 CHI Rare Disease Day T-shirt now on Bonfire – 25% of the proceeds will go towards CHI.

Orders placed by February 4th will arrive between February 13th – 23rd. International delivery may take longer.

Be sure to send us a pic of you and your family in your shirts!


You can find more information about the day and events happening around the world on the official Rare Disease Day site here, as well as information about the National Organization for Rare Disorders (NORD) virtual event on February 8th here, or join several tri-state CHI staff members visiting the Today Show on the 29th here.

Share