Our 2025 Congenital Hyperinsulinism Family Conference in Philadelphia, PA, was a huge success! It was an incredible experience to gather with 160 attendees and 37 hyperinsulinism families from across the country! The conference was organized by Congenital Hyperinsulinism International (CHI) and the Congenital Hyperinsulinism Center at the Children’s Hospital of Philadelphia (CHOP) and took place from October 3-5, 2025.
The CHI staff, the CHOP Congenital Hyperinsulinism Center team, additional world-renowned physicians, researchers, congenital hyperinsulinism (HI) specialists, HI family members, and CHI advocacy leaders presented at the conference. There were also interactive sessions where HI families shared their stories and experiences. View the Conference Agenda here.
View the presentations from this conference here.
Slideshow of Highlights from the Conference: (scroll down below the slideshow for continued coverage)
We kicked off the conference with a wonderful Meet and Greet on Friday evening at the Sheraton, where longtime friends reconnected and new bonds were formed.
Saturday was packed with insightful sessions—an educational marathon covering vital topics in hyperinsulinism care, advocacy, groundbreaking research, and community support and awareness. We also heard moving and heartfelt HI-stories.
We also met in small groups and shared our experiences, gaining insights from each other. While the adults learned together, the children were busy at play and creativity with our fantastic sitters.
Special thanks to Dr. Diva De León-Crutchlow and the Hyperinsulinism Center Team for their help in organizing the conference and making it such a memorable and meaningful weekend.
Thank you to our fantastic presenters over the weekend:
- Scott Adzick, MD, MMM, FAAP
- Sherri Cohen, MD, MPH, FAAP
- Liesje N. Carney, CSP, LDN
- Diva D. De León-Crutchlow, MD, MSCE
- Katherine Lord, MD
- Lauren Lopez, PhD
- Asim Maqbool, MD
- Lauren Mitteer, MEd, CCRP
- Tai Pasquini, PhD
- Julie Raskin, MA
- Kristen Rohli, PhD
- Elizabeth Rosenfeld, MD, PhD
- Winnie Sigal, MD
- Charles Stanley, MD
- Lisa States, MD
- Paul Thornton, MD
- Lora Van Arsdell, PsyD
Thanks to generous sponsors and donors, registration for the conference was free for all HI families, patients, doctors, and researchers, including program registration and admission to all conference sessions, dinner on Friday, breakfast, lunch and dinner on Saturday, and breakfast on Sunday.
