2026 Congenital Hyperinsulinism Family Conference, September 5–7, 2026 in Marseille, France
Congenital Hyperinsulinism International (CHI) warmly invites families, clinicians, researchers, advocates, industry partners, and members of the global HI community to join us in Marseille, France, for the 2026 Congenital Hyperinsulinism Family Conference. This three-day gathering will bring together people from around the world to learn, connect, and support one another in a beautiful Mediterranean setting.
This year’s conference is hosted by CHI and organized in partnership with Dr. JeanBaptiste Arnoux, MD, MSc, Pediatric Metabolic Hospital Practitioner at Necker University Hospital, Paris, and Prof. Rachel Reynaud, Pediatric Endocrinology and Diabetology, Head of the Multidisciplinary Pediatrics Department, Timone Children’s University Hospital of Marseille, who will help guide the program and discussions.
The conference creates opportunities for shared learning across the HI community—bringing together lived experience, clinical expertise, research advances, and emerging innovation. Whether you are newly diagnosed or have years of experience managing HI, the conference provides meaningful education, connection, and support at every stage of the journey. For clinicians and researchers, it also offers important insight into the latest advances in HI research, as well as the lived experiences and perspectives of patients and families.
The weekend will feature a mix of educational sessions, personal stories, smallgroup discussions, and communitybuilding activities. While the full agenda and speaker list will be announced in the coming weeks, you can expect programming similar to past international CHI family conferences, that may include:
- Updates on HI diagnosis, treatment, and longterm management
- Research presentations and clinical trial updates
- Genetics and the evolving understanding of HI
- Nutrition, feeding, and gastrostomy care
- Surgery and postoperative considerations
- Glucose monitoring and technology
- Neurodevelopment, growth, and longterm outcomes
- Transitioning from pediatric to adult care
- Mental health and family wellbeing
- Advocacy, awareness, and global HI initiatives
- HIstories from families around the world
- Breakout groups tailored by HI type, age, or shared concerns
- Activities and supervised care for children during sessions
Registration fees
Thanks to the generosity of CHI donors and sponsors, the conference is free to attend for individuals with HI, their families, clinicians, and researchers. Industry participants who are not conference sponsors are welcome to attend for a per diem registration fee.
Free registration includes:
- Admission to all sessions
- Group meals throughout the conference
- Children’s activities and babysitting during sessions
- Translation services for international participants
Hotel Scholarships
To help make attendance more accessible, CHI will offer a limited number of HI Family Hotel Scholarships for families who need financial assistance. These scholarships cover one hotel room for two nights during the conference and do not include travel or local transportation expenses. Applications are due by August 1, 2026. (Application form coming soon)
About Marseille
Marseille is one of Europe’s most vibrant and historic port cities, known for its Mediterranean coastline, diverse culture, and warm hospitality. From the Old Port to the Calanques, it’s a beautiful place to learn, reflect, and connect with others on the HI journey.
Every voice in the HI community strengthens our collective understanding and support network. By gathering in Marseille, we share knowledge, build relationships, and inspire hope for better treatments and improved quality of life for all those affected by congenital hyperinsulinism.
We look forward to welcoming you in September 2026.
