The National Organization of Rare Diseases (NORD) has created a collection of video clips about rare diseases. Last month they visited our family and filmed us as part of this collection. I am so pleased that Congenital Hyperinsulinism International is represented in this video collection and that NORD is promoting the importance of family support for the rare disease community. You can check out the video at: http://www.youtube.com/raredisorders#p/u/9/ncIDurDaZeM
