The CHI Patient Champions, Amy Sommers, Pam Williams, and Randy Hart came over for lunch last Friday. These three wonderful women are amazing resources for all parents bringing up children with congenital hyperinsulinism (HI). Their contact information is included at the bottom of this post. Here’s a little bit about our visit and our collective … Read more
The National Organization of Rare Diseases (NORD) has created a collection of video clips about rare diseases. Last month they visited our family and filmed us as part of this collection. I am so pleased that Congenital Hyperinsulinism International is represented in this video collection and that NORD is promoting the importance of family support … Read more
An HI diagnosis is often a crisis for the family of a newly diagnosed child. The family must adapt to the responsibilities of caring for a child with very specific needs. To help new families cope with it all, CHI is embarking on a new program linking families of the newly diagnosed with experienced HI … Read more