CHI will be hosting a dinner meeting on September 11, 2009 at the Beacon, 25 West 56th St., NY, NY. Adults and teens with HI are invited to attend as are the parents, grandparents and caregivers of children with HI. Members of CHI and the newly formed CHI Scientific Advisory Group, including pediatric endocrinologists who have worked extensively on HI, will also be in attendance.
The meeting will consist of two parts. Part One will be a Question and Answer session. Attendees will have the chance to pose questions to HI medical specialists about diagnosis, the different types of HI and their genetic underpinnings, surgical and medical treatment, daily management, feeding issues, developmental issues, the transition to diabetes for some, among other topics.
In the second part of the evening HI parents and medical professionals will enter into a discussion on the practical ways in which they can support each other to further scientific research and positive outcomes for children and adults living with HI.
As mentioned above, there will be a special teen table where teens will have an opportunity to talk amongst themselves. They will also be welcome to participate in the Question and Answer session.
The dinner meeting will be on Friday, September 11, 2009 from 6:00 to 8:00PM. The schedule for the evening will be as follows:
6:00-6:30PM Drinks and Informal Discussion
6:30-7:15PM Dinner and Question and Answer Session with the Experts
7:15-8:00PM Dessert and CHI Scientific Advisory Group Discussion
We really hope you can make it. If you are interested please send in the attached form. Seating is very limited so make your reservations early. It will be a great opportunity to meet with other HI parents and individuals with HI, as well as leading professionals in the field. It will also be a chance to become more involved with CHI. If you have any questions about the dinner meeting or CHI, please call or email Julie Raskin at 973-566-0334 or jraskin@congenitalHI.org.
Thanks Julie.
