Yesterday may have been close to the start of a long weekend for many Americans, but a group of CHI patient advocates gathered in Washington, DC, for an energetic day of action before celebrating the nation’s birthday next weekend. It was the first time we spent an entire day on Capitol Hill in Washington, D.C … Read more
Last year, Rianna Sommers, a veteran of many Congenital Hyperinsulinism International (CHI) conferences and a former star CHI intern started her first post-college professional job at Safe Passage Neuromonitoring (SPN). Early on in her tenure at the company, Rianna attended her first SPN staff retreat at the idyllic Mohonk Mountain House in Upstate New York. … Read more
The Second Annual Sugar Soiree, in support of Congenital Hyperinsulinism International (CHI), took place in Hillsborough, California, on Friday, November 13, 2015. It was an evening dedicated to raising hyperinsulinism awareness and funds for research, education, and support. The event took place at Carolands Chateau, a stunning mansion designed by renowned French Architect, Ernest Sanson. … Read more
In honor of Rare Disease Day, February 28, 2015, Congenital Hyperinsulinism International (CHI) will be holding the inaugural Sugar Shindig in Austin, Texas in support of patients living with congenital hyperinsulinism (HI). This year, the theme of World Rare Disease Day is “Living with a Rare Disease: Day by Day, Hand in Hand.” The CHI … Read more
Rianna Sommers, Senior at Muhlenberg College and Congenital Hyperinsulinism International Intern, produced a short documentary film, Hyperinsulinism, Patient Stories, with messages from children and their families living in various locales around the world with congenital hyperinsulinism (HI). The film includes excerpts produced by the families themselves describing the experience of living with the condition, in … Read more