Julie Raskin A surgeon in Germany, Dr. Winfried Barthlen, has successfully treated patients with diffuse congenital hyperinsulinism (HI) by removing only 40% of the pancreas rather than 95% or more, which has been the standard for some time. By removing only 40 percent of the pancreas, Dr. Barthlen is hopeful that his patients will not develop diabetes. … Read more
While attending the APEG (Australian Paediatric Endocrine Group) meeting in Australia, CHI board member, Margaret Maher, learned that some HI patients in Australia were being refused a standard subsidy for diabetics for the purchase of blood sugar level (BSL) testing supplies. On behalf of the denied patients, Margaret entered into discussions with governmental agencies responsible … Read more
SAVE THE DATE Congenital Hyperinsulinism Family Conference March 17-18, 2012 Philadelphia, Pennsylvania Congenital Hyperinsulinism International (CHI), in conjunction with the Children’s Hospital of Philadelphia (CHOP), invites you to attend the fourth Congenital Hyperinsulinism Family Conference. Conference attendees will learn about recent advances in the diagnosis and treatment of congenital hyperinsulinism (HI) from experts in the … Read more
Last Saturday, June 4, Congenital Hyperinsulinism International (CHI) held a dinner meeting in Boston at the Seaport Hotel bringing together families living with congenital hyperinsulinism (HI), leading world experts in the field of HI and other endocrine fields, and representatives from pharmaceutical and genetic testing companies. The meeting was generously sponsored by Teva Pharmaceuticals and … Read more
Please join us for the Congenital Hyperinsulinism International (CHI) Endocrine Society Dinner Meeting on June 4, 2011 from 6:30-9:30 PM at the Seaport Hotel in Boston, Massachusetts. Dinner meeting participants will have an opportunity to speak informally on a range of topics with members of the CHI Scientific Advisory Group comprised of leading world specialists … Read more