Tai at World Orphan Drug Congress

CHI rep at World Orphan Drug Congress

Congenital Hyperinsulinism International (CHI) continues to showcase the amazing work done by hyperinsulinism researchers, healthcare professionals, and drug developers through our Collaborative Research Network (CRN)! Earlier in May, CHI Chief Research Officer Tai Pasquini, PhD, attended the World Orphan Drug Congress in Boston, Massachusetts to highlight the work of the CHI CRN. The CHI Collaborative … Read more


It Takes a Village: Diane and Mahi attend Diabetes Foundation information session

CHI with Diabetes Foundation

At the “It Takes a Village” conversation about diabetes management, CHI was “driving” awareness and education about congenital hyperinsulinism! Our Development Director Diane Esty and Research Manager Mahlet (Mahi) Mesfin attended the event presented by the Diabetes Foundation, Hackensack Meridian Hospital’s Molly Center for Children, and the Bergen County School Nurses Association. Topics included communicating … Read more


Tai visits the Massachusetts State House

Tai from CHI at Massachusetts State House

As a global organization, our staff at Congenital Hyperinsulinism International (CHI) have opportunities to assist patients and doctors in faraway places. Every so often there is a nearby opportunity, allowing our staff to engage face-to-face within their home state. There is a special connection in getting to answer to the needs of the rare disease … Read more


Trudy Ward joins CHI Board of Trustees!

Trudy Ward joins CHI Board

Congenital Hyperinsulinism International is thrilled to welcome Trudy Ward MSc; RNChild; RNAdult; Queens Nurse to our Board of Trustees. Trudy joins the Board as a parent of two grown daughters in Brighton, England, one of whom lives with congenital hyperinsulinism and is now 25 years old. Her partner, Janet Lee, is also a member of … Read more


Julie’s Rare Disease Day

Rare Disease Day 2024

This is the 13th year I have celebrated Rare Disease Day, but it never gets old. Each year brings a yearning for advancements in access to existing treatments and the development and availability of new treatments and cures for all living with rare diseases. As the rare disease community shares every year, taken together, rare … Read more