In the News

It Takes a Village: Diane and Mahi attend Diabetes Foundation information session

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CHI with Diabetes Foundation

At the “It Takes a Village” conversation about diabetes management, CHI was “driving” awareness and education about congenital hyperinsulinism! Our Development Director Diane Esty and Research Manager Mahlet (Mahi) Mesfin attended the event presented by the Diabetes Foundation, Hackensack Meridian Hospital’s Molly Center for Children, and the Bergen County School Nurses Association. Topics included communicating … Read more

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Tai visits the Massachusetts State House

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Tai from CHI at Massachusetts State House

As a global organization, our staff at Congenital Hyperinsulinism International (CHI) have opportunities to assist patients and doctors in faraway places. Every so often there is a nearby opportunity, allowing our staff to engage face-to-face within their home state. There is a special connection in getting to answer to the needs of the rare disease … Read more

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Julie’s Rare Disease Day

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Rare Disease Day 2024

This is the 13th year I have celebrated Rare Disease Day, but it never gets old. Each year brings a yearning for advancements in access to existing treatments and the development and availability of new treatments and cures for all living with rare diseases. As the rare disease community shares every year, taken together, rare … Read more

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Today is HI Global Registry Launch Day!

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Since 2005, Congenital Hyperinsulinism International has been sharing the patient experience to advance the scientific understanding of congenital hyperinsulinism (HI). We have shared the patient story on our website, at meetings, and on social media with story after story of what it is like to live with the condition. As our focus on awareness has … Read more

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