Yesterday may have been close to the start of a long weekend for many Americans, but a group of CHI patient advocates gathered in Washington, DC, for an energetic day of action before celebrating the nation’s birthday next weekend. It was the first time we spent an entire day on Capitol Hill in Washington, D.C … Read more
It was 100 degrees Fahrenheit when we arrived in Philadelphia on Friday evening to be a part of the Million Dollar Bike Ride. Early Saturday morning, when we gathered for the ride, it was somewhat cooler, but the morning still sizzled with expectation and excitement. Through early morning bleary eyes, the Team CHIbra riders are … Read more
The following was shared by CHI Development Director Pam Weber-Leaf: CHI had a chance to raise hyperinsulinism (HI) awareness and connect with our peers in the rare disease space all over the Northeast corridor of the United States last month as part of international Rare Disease Day (RDD) 2026 observances. On Feb. 20, I had … Read more
This is a guest blog post from Shohei Matsumoto of the Japan Hyperinsulinism Patients and Families Association (JHIA). “In order to secure support from the government for the challenges faced by families of patients with hyperinsulinemic hypoglycemia, our association submitted a “Request for Research on Hyperinsulinemic Hypoglycemia” to the Minister of Health, Labour and Welfare. … Read more
The 2025 CHI Family Conference in Philadelphia happened to be held during a gorgeous stretch of weather. Jennifer Schmitt, CHI’s COO, and I traveled together by car from Glen Ridge, NJ, arriving around noon on October 3, ready to set up at the Philadelphia Sheraton University City on the edge of the Penn campus and … Read more