February is an exciting time for hyperinsulinism (HI) and rare disease communities, as it marks Rare Disease Month and Rare Disease Day. Rare Disease Day – on or around the leap day (the rarest day of the year!) – has been an opportunity for our community to share their challenges and triumphs, to offer support … Read more
Guest blog post by Julie Krcmaric In mid-March, I received a message from a high school friend. We had lost touch over the years but recently reconnected when both our children were diagnosed with rare disorders, throwing us both into the unknown. Her message read that the Liberty Science Center was hosting a free Rare … Read more
Yesterday, Congenital Hyperinsulinism International (CHI) took part in The Million Dollar Bike Ride for Orphan Disease Research for the fifth consecutive year. Sunday, May 20, 2018 was another magical day! For those new to the event, it’s the day of the year when people living with rare diseases and their communities come together in Philadelphia … Read more
The CHI Spring Dinner at Fogo De Chão was such an enjoyable evening. We are so grateful to all who came out to support CHI and dine with us last night, and especially to Thaïs Stuart for making this event happen. Thank you to Fogo de Chão for generously contributing to CHI and for … Read more
Our 2015 Grant Recipient, Mark Dunne, PhD, is Raring To Go for CHI! Are you? Read about the 2015 Congenital Hyperinsulinism Research Project funded by our Raring to Go for CHI Million Dollar Bike Ride team! If you can’t attend the ride in Philadelphia on May 20, you can still help and contribute by … Read more