The following was shared by Pamela Weber-Leaf: Hyperinsulinism Awareness Day on Sunday, June 7 was the perfect time to host CHI’s initial viewing party for “Turn Hours Into a Lifetime,” the documentary short film about hyperinsulinism (HI) developed through the organization’s participation in the European Union-funded LightCure project. I was so pleased to have old … Read more
The following is a guest blog post by Anna: On June 7th each year, I take a moment to pause and recognize the condition, which transformed my life – a condition that is invisible most of time until a hypo announces itself without warning. This rare condition, affects each of us differently, yet we are … Read more
Ever since I was a little kid, I’ve been fascinated by genetics. The idea that tiny pieces of information inside our cells help not only shape who we are but can also cause chaos with even one small change has always been incredible to me. This awe and appreciation led me to a Genetics PhD … Read more
Blog post by HI father Saqib: I am writing to share the wonderful achievement of my daughter, Abeera, who has been bravely dealing with hyperinsulinemia since birth. She has secured first position in her class. This accomplishment is truly a blessing and a very proud moment for our family. Abeera was diagnosed when she was … Read more
Angela Calderon Pio’s world turned upside down when her sister, Alina, was born in January 2017. As a child approaching her preteens, she was ecstatic to welcome a younger sister – a built-in best friend to dress up, play with, and love more than she could imagine. But Alina’s early days, months, and even years … Read more