Ever since I was a little kid, I’ve been fascinated by genetics. The idea that tiny pieces of information inside our cells help not only shape who we are but can also cause chaos with even one small change has always been incredible to me. This awe and appreciation led me to a Genetics PhD … Read more
Blog post by HI father Saqib: I am writing to share the wonderful achievement of my daughter, Abeera, who has been bravely dealing with hyperinsulinemia since birth. She has secured first position in her class. This accomplishment is truly a blessing and a very proud moment for our family. Abeera was diagnosed when she was … Read more
Angela Calderon Pio’s world turned upside down when her sister, Alina, was born in January 2017. As a child approaching her preteens, she was ecstatic to welcome a younger sister – a built-in best friend to dress up, play with, and love more than she could imagine. But Alina’s early days, months, and even years … Read more
The following has been shared by Anna Nicolaou: A diagnosis is just a label but the life behind it is a realty that only a few can understand. For me that reality is Congenital Hyperinsulinism; a journey marked by relentless resilience and one which completely transformed not just my life but also the lives of … Read more
This is a guest blog post from Shohei Matsumoto of the Japan Hyperinsulinism Patients and Families Association (JHIA). “In order to secure support from the government for the challenges faced by families of patients with hyperinsulinemic hypoglycemia, our association submitted a “Request for Research on Hyperinsulinemic Hypoglycemia” to the Minister of Health, Labour and Welfare. … Read more