Did you know that a Continuous Glucose Monitor (CGM) collects 288 blood glucose values every day? When you use a CGM, you are collecting important information that could help HI researchers learn more about HI and develop new treatments and cures for HI. CGMs are used by many to monitor their glucose levels as part of HI treatment management, but until now, this important source of knowledge about glucose levels in people who live with HI has rarely been collected and studied outside of clinical trials. This new stream of information could help researchers learn more about glucose management in the HI community.
The HI Global Registry (HIGR) allows participants to connect their devices and share this incredible data source with HI researchers. Information about your glucose monitoring has the potential to tell us so much about the true day-to-day impact of HI on the lives of people in this community. The information can be paired with your HIGR survey responses to help HI researchers understand how glucose management is impacted by HI type, treatment options, medications, and so much more! Make sure your experience with HI is included and connect your CGM to HIGR! Log in to HIGR today to share your CGM values, it only takes a few minutes!
Login to HIGR to Connect your CGM and Contribute to HI Research
Important reminder: Your data is always de-identified for research studies. That means that any information that could identify you, such as your name or date of birth, is never shared with researchers.
Compatible Glucose Monitoring Devices
The HI Global Registry currently supports the following glucose monitoring devices for data collection via HIGR:
- Dexcom, G4
- Dexcom, G5
- Dexcom, G6
- Dexcom, G7
We are actively working to enable data collection from more glucose monitoring devices. Click here to jump to the bottom of this page and see the list of devices we are working on adding.
Why should you share your glucose values with HIGR?
- Help to expand access to CGM. CGM is currently not approved for use in HI. By collecting data from people who use CGM off-label in HI, we can advocate to expand CGM approval for HI.
- Improve the understanding of glucose patterns in HI. People with HI experience hypoglycemia and hyperglycemia differently than people with diabetes. We need to understand more about these patterns in HI to help improve CGM technology and develop new treatments for people with HI.
- Improve CGM accuracy in the low range. It is known that CGM is not as accurate in the low range (hypoglycemia) as it is in the normal or high range (hyperglycemia). By collecting CGM data from people with HI, we may be able to help CGM companies develop better accuracy for hypoglycemia.
- Comparator arm for clinical trials. CGM data collected in the real world (outside of clinical trials) may be used as a control arm for future clinical trials. This means that your CGM data may be used to help approve new treatments for HI in the future!
How to connect your Dexcom CGM to HIGR
Take a look at our PDF Guide, How to Connect a Dexcom CGM for full instructions with screenshots.
- Log in to HIGR and view a patient’s dashboard (not the caregiver dashboard)
- Select “Apps and Devices” in the navigation pane on the left. If you don’t see “Apps and Devices”, click the person icon in the top right corner and switch to a patient dashboard.
- Click “Connect” on the Dexcom card
- Enter your log in details for Dexcom
- Follow the instructions to give permission to share your glucose values with HIGR
- How do you view your CGM values?
- Smart device (e.g. phone or watch): No extra steps required! Your CGM will stay connected to HIGR and provide updated data every day unless you choose to disconnect it
- Handheld receiver: Upload your CGM values to Dexcom Clarity once per month to send data to HIGR. Note: We encourage everyone with a compatible smart device to download the Dexcom app to avoid needing to manually connect the receiver to Dexcom Clarity.
Any questions? See our PDF Guide, How to Connect a Dexcom CGM for a step-by-step guide with screenshots, or get in touch at info@higlobalregistry.org.
Coming Soon: Share data from other Glucose Monitoring Devices
We are still working on enabling the following devices to share glucose values via HIGR. Don’t see the glucose monitoring device you use? Please email info@higlobalregistry.org and let us know what device you use.
Continuous Glucose Monitors (CGM)
- Abbott FreeStyle Libre CGM
Glucose Meters (Glucometers)
- Abbott
- Abbott FreeStyle Freedom Lite Glucose Meter
- Abbott FreeStyle Lite Glucose Meter
- Abbott FreeStyle Precision Neo Glucose Meter
- Abbott FreeStyle Precision Xtra Glucose Meter
- Ascensia Diabetes Care
- Ascensia Diabetes Care Contour Next 7901H
- Ascensia Diabetes Care Contour Next 7902H
- Ascensia Diabetes Care Contour Next One Glucose Meter
- Ascensia Diabetes Care Contour Plus One Glucose Meter
- Bayer
- Bayer Breeze 2 Glucose Meter
- Bayer Contour Glucose Meter
- Bayer Contour Next EZ Glucose Meter
- CVS
- CVS Health Advanced Bluetooth Glucose Meter
- CVS TRUE METRIX AIR Glucose Meter
- CVS TRUE METRIX Glucose Meter
- CVS TRUEresult Glucose Meter
- CVS TRUEtrack Glucose Meter
- ACCU-CHECK
- ACCU-CHEK Aviva Connect Glucose Meter
- ACCU-CHEK Guide Glucose Meter
- ACCU-CHEK Guide Me Glucose Meter
- ACCU-CHEK Instant Glucose Meter
- ACCU-CHEK Aviva Plus Black Glucose Meter
- ACCU-CHEK Aviva Plus Silver Glucose Meter
- ACCU-CHEK Compact Plus Glucose Meter
- ACCU-CHEK Nano Glucose Meter
- ACCU-CHEK Performa Glucose Meter
- ACCU-CHEK Performa II Glucose Meter
- LifeScan OneTouch
- LifeScan OneTouch Verio Reflect Glucose Meter
- LifeScan OneTouch Verio Flex Glucose Meter
- LifeScan OneTouch SelectSimple Glucose Meter
- LifeScan OneTouch Ultra2 Glucose Meter
- LifeScan OneTouch UltraMini Glucose Meter
- Relion
- Relion Premier BLU Glucose Meter
- Relion Confirm Glucose Meter
- Relion Prime Glucose Meter
- Relion Ultima Glucose Meter
