Presentations from the 2026 Family Conference in Antalya, Turkey

The History of HI

“History of congenital hyperinsulinism care: Key Clinical Milestones” presented by Khalid Hussain, MBChB, MD, BRCP, MRCPCH, MSc.

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Patient Powered Research

“Patient-powered Research and Advocacy Milestones” presented by Trudy Ward, QN, MSc, and Kristen Rohli, PhD.

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The Genetics of HI

“Genetics of CHI: How do we know?” presented by Professor Sarah Flanagan.

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A diagnostic odyssey

“The Diagnostic Odyssey: Perspective in HIGR” presented by Kristen Rohli, PhD.

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Managing and treating HI

“Managing and Treating HI: Safety Fasts and Cure Fasts” presented by Dr. Antonia Dastamani, Consultant of Paediatric Endocrinology and Diabetes.

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Current Treatment Options for HI

“Current Medical Treatment Options, Including Gastrostomy for HI” presented by Diva D. De León-Crutchlow, MD, MSCE.

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Caregiver and Patient perspective on Glucose Monitoring

“The Caregiver and Patient Perspective on Glucose Monitoring: Learning from the HI Global Registry” presented by Lauren Lopez, PhD, and Kristen ROhli, PhD.

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Family Story to Global Advocacy

“From my family story to global advocacy” presented by Julie Raskin, Chief Executive Officer, Congenital Hyperinsulinism International.

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Awareness Updates Presentation

“HI Advocacy and Awareness Updates” presented by Jennifer Schmitt, CHI Chief Operating Office, and Lily Barnett, CHI Communications Associate.

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CHI in Turkey

“Outcomes Reports from Turkey” presented by Ekin Demirbilek, Ankara University Faculty of Medicine.

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Your Voice has Power presentation by Kristen Rohli

“Your Voice Has Power: How Research Helps to Tell the HI Story” presented by Kristen Rohli, PhD.

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