Julie Raskin Cristina Pindado, the mother of a child born with congenital hyperinsulinism (HI) is President of the the Spanish Association for those Affected by Congenital Hyperinsulinism (AFHICO). Cristina often collaborates with CHI representing HI advocacy, support, and research initiatives in Spain and all of Europe. In addition to being an active patient advocate, Cristina is highly … Read more
The CHI Team is proud to announce our new Program Manager, Katherine Hinchliffe! “I am so thrilled to be joining the staff of CHI.” Katherine has been a volunteer with CHI for 6 years and first became involved through her relationship with a CHI family. We are thrilled to have her! “I’ve been honored … Read more
Welcome to CHI! CHI is thrilled to announce Jacqueline Kraska will be joining the CHI team as the HI Global Registry Manager on September 26. We want to extend a very warm welcome to her. By way of introduction, Jacqui has the following message to the HI community: “Hi everyone, it is an absolute … Read more
Social Security Disability for Congenital Hyperinsulinism Most often, when people think of Social Security disability benefits, they think of a disabled worker who is unable to continue with his work duties and support his family. This is not always the case. There are many children that qualify for Social Security disability benefits because they were … Read more
Earlier this month, on Saturday, May 7, the Raring to Go for CHI team took part in the Million Dollar Bike Ride. Over 600 riders assembled in Philadelphia to ride bikes with the purpose of raising rare disease research funds. The CHI team was our biggest ever. Folks with congenital hyperinsulinism (HI) and their friends, … Read more