Conference

The CHI Family Conference in Marseille: Science, Shared Experience, and the Future of Living with HI

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CHI Family Conference in Marseille, 2026

From September 4–6, families, clinicians, researchers, advocates, and biotechnology representatives from twelve countries and three continents gathered in Marseille, France, for the first CHI Family Conference in the South of France. CHI organized the conference in partnership with Necker Hospital, the University Hospitals of Marseille, the University of Aix-Marseille, FIRENDO, and G2M, creating a rare … Read more

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Report from the 2025 CHI Family Conference in Philadelphia

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CHI Staff in Philadelphia at the Family Conference

The 2025 CHI Family Conference in Philadelphia happened to be held during a gorgeous stretch of weather. Jennifer Schmitt, CHI’s COO, and I traveled together by car from Glen Ridge, NJ, arriving around noon on October 3, ready to set up at the Philadelphia Sheraton University City on the edge of the Penn campus and … Read more

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Copenhagen 2025

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CHI Copenhagen Conference group photo

Last Wednesday I returned from an unforgettable jam-packed 8 days in Copenhagen. I was there for 3 reasons: 1) To provide subject insight for the shooting of a documentary film about hyperinsulinism; 2) To co-create the CHI Family Conference in Copenhagen with Henrik Christesen and his incredible team at Odense University/Hans Christian Anderson Children’s Hospital, … Read more

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Down and Up

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CHI YouTube Music video

CHI has a new YouTube music video. Singer songwriter Janna Pelle performs her original song, “Down and Up” with children who attended the Congenital Hyperinsulinism Family Conference at Cook Children’s in Fort Worth, TX last spring. The video is lots of fun and a great way for kids to introduce congenital hyperinsulinism to friends and … Read more

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HI Researchers, Clinicians, and Patient Advocates Gather in Lisbon

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CHI Portugal Conference

52 Heroic doctors, brilliant researchers, courageous parents, and a brave adult with HI spent two days in Lisbon, Portugal from February 28-March 2 working intently on making the future better for people with hyperinsulinism. The CHI Collaborative Research Network is a dynamic international collaboration of researchers, clinicians, and expert patient and caregiver advocates working together … Read more

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