The 2025 CHI Family Conference in Philadelphia happened to be held during a gorgeous stretch of weather. Jennifer Schmitt, CHI’s COO, and I traveled together by car from Glen Ridge, NJ, arriving around noon on October 3, ready to set up at the Philadelphia Sheraton University City on the edge of the Penn campus and … Read more
Last Wednesday I returned from an unforgettable jam-packed 8 days in Copenhagen. I was there for 3 reasons: 1) To provide subject insight for the shooting of a documentary film about hyperinsulinism; 2) To co-create the CHI Family Conference in Copenhagen with Henrik Christesen and his incredible team at Odense University/Hans Christian Anderson Children’s Hospital, … Read more
CHI has a new YouTube music video. Singer songwriter Janna Pelle performs her original song, “Down and Up” with children who attended the Congenital Hyperinsulinism Family Conference at Cook Children’s in Fort Worth, TX last spring. The video is lots of fun and a great way for kids to introduce congenital hyperinsulinism to friends and … Read more
52 Heroic doctors, brilliant researchers, courageous parents, and a brave adult with HI spent two days in Lisbon, Portugal from February 28-March 2 working intently on making the future better for people with hyperinsulinism. The CHI Collaborative Research Network is a dynamic international collaboration of researchers, clinicians, and expert patient and caregiver advocates working together … Read more
I began working with CHI in August 2024, and from the very start, I kept hearing about the plans for a family conference in Liverpool, UK. Having only attended academic conferences, I had no idea what to expect from a family conference. As the months flew by, agendas were being sent around, registration numbers were … Read more