My First Family Conference: Breakdancing and Murphy’s Law

CHI group at 2024 Family Conference in Fort Worth

As CHI’s Communications Associate, one of my primary roles is to elevate the patient voice in our hyperinsulinism advocacy work. Working digitally, though, can take me out of the real-life challenges that come along with HI management – I don’t see first-hand the daily inconveniences and anxieties around food, development, and mobility. At our most … Read more

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A Texas Welcome for the #CHIFAM2018 Conference

The 2018 Congenital Hyperinsulinism Family Conference in Fort Worth, Texas organized by Cook Children’s and Congenital Hyperinsulinism International (CHI) took place over last weekend, July 27-29. 150 people gathered including kids with HI, their siblings, parents, physicians, researchers, and members of the Biotech industry. “Everything I heard this weekend was of benefit and provided me … Read more

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CHI Family Conference in Barcelona

The 2015 Congenital Hyperinsulinism (HI) Family Conference took place on September 29th and 30th at the Hospital Sant Joan de Déu in Barcelona, Spain. The Conference was a joint project of Congenital Hyperinsulinism International (CHI) and the Hospital Sant Joan de Déu. Participants gained a comprehensive understanding of HI including the history of basic scientific … Read more

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Congenital Hyperinsulinism: The Year in Review

For those who were newly diagnosed this year and their families, Congenital Hyperinsulinism (HI) began with a major crisis. There was the terrible moment when something was found to be wrong, followed by a diagnostic process, the search for physicians and nurses who understood the condition, the hunt for an effective medication, and sometimes surgery, … Read more

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You’ve Come a Long Way Baby: Patient Families, Congenital Hyperinsulinism Specialists, and Advocates Meet in Italy

Congenital Hyperinsulinism International (CHI) held the Fifth Congenital Hyperinsulinism Family Conference at the NH Milano 2 Hotel in Segrate, Italy just outside of Milan on September 17 and 18, 2013. It was an intensive two days of presentations on many aspects of congenital hyperinsulinism, from the experience of living with the condition, to the latest … Read more

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