CHI is pumped to announce we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) on May 3, 2014. This event will raise awareness of rare diseases while raising funds for rare disease research. Our team, the “Raring to Go for … Read more
For those who were newly diagnosed this year and their families, Congenital Hyperinsulinism (HI) began with a major crisis. There was the terrible moment when something was found to be wrong, followed by a diagnostic process, the search for physicians and nurses who understood the condition, the hunt for an effective medication, and sometimes surgery, … Read more
Congenital Hyperinsulinism International (CHI) held the Fifth Congenital Hyperinsulinism Family Conference at the NH Milano 2 Hotel in Segrate, Italy just outside of Milan on September 17 and 18, 2013. It was an intensive two days of presentations on many aspects of congenital hyperinsulinism, from the experience of living with the condition, to the latest … Read more
Planning for the Congenital Hyperinsulinism International Family Conference in Milan, Italy is going extremely well. We have families coming from Italy, Spain, Dubai, Paraguay, France, Germany, Austria, the U.K., Canada, and the U.S. We have 15 speakers from Germany, Austria, Canada, the UK, and the U.S. Speakers include leading congenital hyperinsulinism researchers, practitioners, and patient … Read more
We have linked articles from a newspaper in Paraguay for our Spanish readers. Gianfranco, a boy from Paraguay, was diagnosed with congenital hyperinsulinism. The newspaper story also includes an interview in Spanish with Dr. Diva DeLeon, Medical Director of the Congenital Hyperinsulinism Center at the Children’s Hospital of Philadelphia, where Gianfranco went for treatment. Maria … Read more