There is a remarkable amount of activity right now focused on understanding what it’s really like to live with congenital hyperinsulinism (HI). Through the HI Global Registry (HIGR) — the patient-powered research project CHI launched in 2018 — we’ve been able to capture the lived experience of HI in a detailed, scientific, and meaningful way. … Read more
CHI is pumped to announce that once again we will be participating in the first Million Dollar Bike Ride sponsored by The Penn Medicine Orphan Disease Center on May 7, 2016. This event will raise awareness of rare diseases while raising funds for rare disease research. Our team, the “Raring to Go for CHI” team … Read more
The 2015 Congenital Hyperinsulinism (HI) Family Conference took place on September 29th and 30th at the Hospital Sant Joan de Déu in Barcelona, Spain. The Conference was a joint project of Congenital Hyperinsulinism International (CHI) and the Hospital Sant Joan de Déu. Participants gained a comprehensive understanding of HI including the history of basic scientific … Read more
In honor of Rare Disease Day, February 28, 2015, Congenital Hyperinsulinism International (CHI) will be holding the inaugural Sugar Shindig in Austin, Texas in support of patients living with congenital hyperinsulinism (HI). This year, the theme of World Rare Disease Day is “Living with a Rare Disease: Day by Day, Hand in Hand.” The CHI … Read more
On May 3, over 540 people rode their bikes in and around Philadelphia to raise money for rare disease research. In the process, the group of dedicated rare disease advocates raised over $1.4 million. Congenital Hyperinsulinism International (CHI) was one of 15 teams to participate in the race and the “Raring to Go for CHI” … Read more