The first interim report on the NORD Research Grant to Dr. Diva DeLeon of the Children’s Hospital of Philadelphia for her work on exendin (9-39) has been submitted. NORD has graciously permitted us to share the public portion of this interim report. This groundbreaking research is funded by the Mario Batali Foundation. Dr. Deleon receives … Read more
Congenital Hyperinsulinism International is thrilled to announce family scholarship grants for the upcoming CHI Family Conference in Milan on September 17 and 18, 2013. The Family Scholarships will cover the cost of registration for two family members and one night at the conference hotel, the NH Milano 2 Hotel. This generous donation was provided by … Read more
The annual Congenital Hyperinsulinism International Endocrine Society Meeting will take place in Berkeley, California on June 15-16, 2013. For families living with the condition, congenital hyperinsulinism (HI), this meeting is a must. Over the course of these two days, families have unprecedented access to leading researchers and clinicians in the field as well as an … Read more
Jen was running toward us, her arms spread out like wings. We had been waiting for this moment for hours, for Jen to run on by. But she didn’t. She sacrificed some seconds from her time to stop and give us all hugs. That’s just like Jen Tedstone. So full of love and energy that … Read more
Read about how the Pennsylvania McLaughlin Family is fundraising for Congenital Hyperinsulinism International while raising awareness. Julie Raskin: I am so impressed that you and Jack have taken the initiative to organize “Dress Down Days” at school to benefit Congenital Hyperinsulinism International, the organization dedicated to improving the lives of patients with congenital hyperinsulinism. You … Read more