Julie Raskin:  CHI is thrilled to learn that you have been given an endowed chair at Cook Children’s. This is very exciting and a great step forward for the whole field. Congratulations! What will this mean for your work and the future of the Cook Children’s Hyperinsulinism Center? Paul Thornton:  Yes, this is a very … Read more

As parents of children with congenital hyperinsulinism (HI), we often suffer heartbreak and loss. There is so much to mourn: parents of babies diagnosed at birth never get to experience the normal joys and normal anxieties of caring for a newborn. Those whose babies are diagnosed after several months never return to the innocent phase … Read more

The FDA has granted orphan drug status to Biodel’s stable glucagon for congenital hyperinsulinism patients. This represents one more important milestone in the development of this drug for HI patients. This FDA designation creates a range of financial incentives for the further development of the drug. Earlier this year, Biodel had received orphan drug designation … Read more

Congenital Hyperinsulinism International (CHI) is happy to announce that Dr. Diva de Leon of the Children’s Hospital of Philadelphia has just been awarded a $50,000 grant to study “The Effect of GLP-1 Receptor Antagonism on Protein-Induced Hypoglycemia in KATP HI.” The study will examine the effect of exendin-(9-39) — a potent glucagon-like peptide (GLP-1) receptor … Read more

Tonight the artwork of Kivrin Hopkins, a nine year old girl with congenital hyperinsulinism, will be displayed at the Rare Voices Gala in Washington DC, honoring members of congress, congressional staff and patient advocates who have raised the profile of rare diseases. Kivrin’s artwork is a 2012 Grand Prize winner of the Rare Artist Contest … Read more