In November, CHI (Congenital Hyperinsulinism International) qualified for membership to NORD, The National Organization for Rare Diseases. “This is really good news for CHI,” said Isabel Calderon the CHI Board of Directors liaison to NORD. “With this membership, CHI will be able to benefit from NORD’s many resources and services.” Prior to the creation of … Read more
Congenital Hyperinsulinism International (CHI) held a dinner meeting in New York City at the Beacon Restaurant on September 11, 2009. There were 56 people attending in all, including HI patients, parents, nurses, physicians, researchers, and other professionals from the health care industry. The meeting also brought together members of the newly formed CHI Scientific Advisory … Read more
You can send a request to be added to the CHOP (Children’s Hospital of Philadelphia) mailing list for parents by e-mailing hyperinsulinism@email.chop.edu with a subject of “[Add me to the CHOP mailing list for parents]”, and include: Your name Your mailing address If CHOP doesn’t know your child, indicate whether you are willing to share … Read more
CHI will be hosting a dinner meeting on September 11, 2009 at the Beacon, 25 West 56th St., NY, NY. Adults and teens with HI are invited to attend as are the parents, grandparents and caregivers of children with HI. Members of CHI and the newly formed CHI Scientific Advisory Group, including pediatric endocrinologists who … Read more
We’re very pleased to announce that we’ll be attending the Lawson Wilkins Pediatric Endocrine Society / European Society for Pediatric Endocrinology 8th Joint Meeting on Global Care in Pediatric Endocrinology in New York, September 9-12, 2009. The URL for the conference is http://www.lwpes-espe2009.org. We will have a non-profit booth in the vendor area. If you’re … Read more