The following is a guest post by Felecia Nugent: Hi! My name is Felecia and I am 35 years old living with HI! I was diagnosed with HI when I was 28 yrs old, after my daughter Hannah was born and diagnosed with HI. I was a very sick child that was misdiagnosed with hypoglycemia … Read more
This is a guest blog post from Shohei Matsumoto of the Japan Hyperinsulinism Patients and Families Association (JHIA). “In order to secure support from the government for the challenges faced by families of patients with hyperinsulinemic hypoglycemia, our association submitted a “Request for Research on Hyperinsulinemic Hypoglycemia” to the Minister of Health, Labour and Welfare. … Read more
Read this post in Italian. My name is Martina Sena, and I’m a mother to a beautiful three-year-old girl named Gioia. I’m also an intensive care nurse. You would think my professional background would have prepared me for anything, but nothing could have prepared me for the journey we began when Gioia was just five … Read more
Hello, my name is Julie, and I am currently a senior at the University of Pittsburgh! Admittedly, receiving the initial diagnosis of Congenital Hyperinsulinism (HI) impacted my parents more than me; however, the notion of being a “mystery child” has always been something I’ve wrestled with. Growing up, I knew that I was “different”. Other … Read more
From Birth to Diagnosis: Camilla’s Tough Start We are an international family living in Denmark. I’m a Chinese mother, and my husband is Danish. Our first daughter, Camilla, was born in January 2021. During my pregnancy, there were some unusual signs. Camilla’s heartbeat was slightly higher than normal at 35 weeks, and I was suspected … Read more