Congenital Hyperinsulinism International (CHI) held the Fifth Congenital Hyperinsulinism Family Conference at the NH Milano 2 Hotel in Segrate, Italy just outside of Milan on September 17 and 18, 2013. It was an intensive two days of presentations on many aspects of congenital hyperinsulinism, from the experience of living with the condition, to the latest … Read more
The first interim report on the NORD Research Grant to Dr. Diva DeLeon of the Children’s Hospital of Philadelphia for her work on exendin (9-39) has been submitted. NORD has graciously permitted us to share the public portion of this interim report. This groundbreaking research is funded by the Mario Batali Foundation. Dr. Deleon receives … Read more
Parents who have children with congenital hyperinsulinism (HI) and adults living with the condition continue to wish there were more HI treatment options. While treatment does exist in most cases, it is far from ideal. With the goal of introducing a more effective treatment for patients who are not responsive to diazoxide, researchers at the Children’s … Read more
For years congenital hyperinsulinism researchers have been studying the properties of green tea to potentially cure hypoglycemia due to hyperinsulinism/hyperammonemia syndrome. People suffering from this type of hyperinsulinism must load up on carbs before ingesting protein because of increased responsiveness to leucine. Many of these patients also take a medication, diazoxide, to control blood sugar … Read more
A surgeon in Germany, Dr. Winfried Barthlen, has successfully treated patients with diffuse congenital hyperinsulinism (HI) by removing only 40% of the pancreas rather than 95% or more, which has been the standard for some time. By removing only 40 percent of the pancreas, Dr. Barthlen is hopeful that his patients will not develop diabetes. … Read more