CHI Family Conference in Barcelona

The 2015 Congenital Hyperinsulinism (HI) Family Conference took place on September 29th and 30th at the Hospital Sant Joan de Déu in Barcelona, Spain. The Conference was a joint project of Congenital Hyperinsulinism International (CHI) and the Hospital Sant Joan de Déu. Participants gained a comprehensive understanding of HI including the history of basic scientific … Read more

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Congenital Hyperinsulinism: The Year in Review

For those who were newly diagnosed this year and their families, Congenital Hyperinsulinism (HI) began with a major crisis. There was the terrible moment when something was found to be wrong, followed by a diagnostic process, the search for physicians and nurses who understood the condition, the hunt for an effective medication, and sometimes surgery, … Read more

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You’ve Come a Long Way Baby: Patient Families, Congenital Hyperinsulinism Specialists, and Advocates Meet in Italy

Congenital Hyperinsulinism International (CHI) held the Fifth Congenital Hyperinsulinism Family Conference at the NH Milano 2 Hotel in Segrate, Italy just outside of Milan on September 17 and 18, 2013. It was an intensive two days of presentations on many aspects of congenital hyperinsulinism, from the experience of living with the condition, to the latest … Read more

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Gianfranco from Paraguay

We have linked articles from a newspaper in Paraguay for our Spanish readers.  Gianfranco, a boy from Paraguay, was diagnosed with congenital hyperinsulinism.  The newspaper story also includes an interview in Spanish with Dr. Diva DeLeon, Medical Director of the Congenital Hyperinsulinism Center at the Children’s Hospital of Philadelphia, where Gianfranco went for treatment.  Maria … Read more

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New Approach to Surgery for Some Diffuse Patients

A surgeon in Germany, Dr. Winfried Barthlen, has successfully treated patients with diffuse congenital hyperinsulinism (HI) by removing only 40% of the pancreas rather than 95% or more, which has been the standard for some time. By removing only 40 percent of the pancreas, Dr. Barthlen is hopeful that his patients will not develop diabetes. … Read more

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